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Yes really misleading. Supplementary material C shows that PSC-2 and PSC-3 showed no statistically significant difference between the group. Makes me think the result was also not significant if the three questions were combined. And if they corrected for multiple comparisons, none of the...

Is there a connection to Red labo of De Meirleir in Belgium?

Interesting read. I'm not sure though that loosening FDA regulations is in the interest of patients. The article also touches on the questions of patient groups being influenced by drug companies. It points to this article which found that of 104 U.S.-based patient-advocacy organizations with...

Dr. Elke Van Hoof is a psychologist who previously worked with Kenny De Meirleir and published several papers on CFS. She then moved to other things such as burnout and hypersensitivity. In the articles, her team accused her of toxic leadership. She also made some questionable claims about Eye...

Agree. Direct quote from the article: "Participants were asked to complete two symptom questionnaires, one of which detailed “present” symptoms and the other “recalled” symptoms from the first two weeks after COVID-19 diagnosis, an average of 21.7 weeks prior." It would be interesting data if...

The thesis writes: "The study topics and research questions were determined in collaboration with Msc. Y. Dooms and Dr. Maaike Van Den Houte. Due to the fact that the study was a component of an ongoing research project, we were not involved in decisions about research design or methodology"

The link to the article does not work for me but I noticed that the chapter is also uploaded here: (PDF) Pragmatism in the fray: Constructing futures for 'medically unexplained symptoms' | Monica Greco - Academia.edu

Certainly no expert here but I think all of these things don't matter that much for love. I suspect you're underestimating yourself. Based on your posts on S4ME you seem intelligent and kind. Lots of people are in this situation and I suspect there is no other answer than just give it a try...

An article about this paper: Magnetic resonance imaging shows brain inflammation in vivo for the first time (medicalxpress.com) It sounds interesting. Here's a relevant paragraph: "An innovative strategy developed by the researchers has made possible this important breakthrough, which is...

Not exactly a recommendation. The authors asks: "isn’t listening to patients perceptions of causation more likely to provide insights rather than looking down a microscope?" The main question - "Why do we not have evidence of biological malfunctioning for severe mental disorders?" - is...

Abstract Biological research has produced major advances in our understanding of our bodies and, where systems go wrong, is producing remedies to address these, but it has yet to do the same for the mind. This is because no causative biological evidence has been found for the major mental...

I think a threshold of 35 has been used before for the CIS questionnaire see for example: The assessment of fatigue: Psychometric qualities and norms for the Checklist individual strength - PubMed (nih.gov)

Yes it seems that there were only 7 patients with persistent postCOVID-19 headache. IMHO it should be required the mention the sample size in the abstract.

There was a short update on the ZonMw ME/CFS program. Sjaak de Gouw will be the new chair of the program. https://www.zonmw.nl/nl/nieuws/mecvs-update-nieuwe-commissievoorzitter-nieuwe-richtlijn-mecvs-en-1e-projecten-van-start Copied to The Netherlands - €28.5 million ME/CFS research program -...

Post copied and reply moved from the news from the Netherlands thread. There was a short update on the ZonMw ME/CFS program. Sjaak de Gouw will be the new chair of the program. https://www.zonmw.nl/nl/nieuws/mecvs-update-nieuwe-commissievoorzitter-nieuwe-richtlijn-mecvs-en-1e-projecten-van-start

Looks very useful to me. The supplementary material includes the full questionnaire. It consists 55 concrete questions about activities where you can give 7 different scores, depending on how impactful it would be for you (thus including PEM). It always frustrates me that many functional...

Strange that only 0.4% of their sample developed Long Covid. Many patients might have been overlooked by the healthcare system or remained undiagnosed.

It seems that the last author published 78 papers in 2022, or about 1 every 5 days. Does not give much confidence that he has methodology at heart when writing articles like this one. Papers — Vinay Prasad MD, MPH (vinayakkprasad.com)

The authors also write about another study in 12-16 year olds: Specifically they found 9% of antibody-positive children had at least one symptom after 4 weeks compared with 10% of those without antibodies.25 But reference 25 points to Antonelli M, Pujol JC, Spector TD, et al. Risk of long...

Also strange that they don't cite the Lifelines study (Ballering et al. 2022) which found: In 12·7% of patients, these symptoms could be attributed to COVID-19, as 381 (21·4%) of 1782 COVID-19-positive participants versus 361 (8·7%) of 4130 COVID-19-negative controls had at least one of these...