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Almost anyone can play the psychosomatic blame game. No training required. Othering comes naturally. This tendency is one of the things that has made the stigmatization of pwME so easy for the BPS Brigade.

Absolutely frustrating; will this nonsense never end! (Well of course not, as long as there are DIAAs - thanks to @Arnie Pye for the new acronym.) How about a brain scan MRI for people who present with these symptoms?!! Sometimes, this can reveal there are actually physical problems...

Question: I didn't see this mentioned in the study, might imaging of the diaphragm provide helpful info? I know it can be affected in chronic lung conditions. Or, maybe this is too basic a test?

Exactly! There was, and still is incorrectly, a lot of focus on fatigue. Very plainly, the stigmatizing term "chronic fatigue syndrome", greatly assisted in misinforming about this debilitating, biomedical disease.

@NelliePledge and @Kitty Me too! I'd read as much as I could find on ME, but for many years, I never came across the concept/term PEM. There were lots of symptoms discussed in the stuff I read, but no mention of PEM, until much later on.

Awful to have these, and many other symptoms with ME for sometimes several years before anything medically effective is done about it.

Exactly!

Canada has had other drug shortages as well. Selling large amounts of any pharmaceutical out of country may lead to drug shortages for Canadians.

Good to see this. Replication required. So, what do pwME have to prove intense exercise is contraindicated? The 2 Day CPET, and the invasive CPET results are two sets of findings. Off the top, do we have any other findings, post intense exertion? Maybe the intramural NIH studies will reveal...

It's heartening to see a developing view of viruses as having the potential to cause long-term or permanent injury. This has been understood with some illnesses, but the destructive or injurious effects of COVID and also EBV have been dismissed by most of the medical system. Also important, as...

N=1; use of the reportedly more bioavailable form of CoQ10 - Ubiquinol, somewhat improves energy. ABA trials have been done many times with the same result. Dosage used varies. This is an expensive supplement to afford, especially on a disability pension.

Alcohol intolerance started early with ME for me. Would be interesting to know what's going on with this. Not sure how this could be studied, if at all.

Absolutely; for decades.

Great, thank you!

Hi @Kalliope Thanks very much. This confirms my thoughts that ME is getting more coverage. I haven't gone over the list to see how many are evidence based vs. the number from a biopsychosocial bias.

From the article: "Despite largely normal laboratory tests... What were the abnormal test results? Presumably they were not significant. Although I had a couple significant immune system test results that were said to be normal, that were definitely not. And, as had been noted before, regular...

Agreed. :thumbup:

Thank you @Laurie P

Too bad it's paywalled. I like the phrase "longstanding bias quietly fills argumentative gaps in scientific and popular discourse." I can visualize the bias spreading and coating the area, sliding into the gaps, like syrup on pancakes. An enjoyable, sweet, filling, and reassuring meal...

As with pain noted in the article, there is also othering done in searching for a harmful habit, that may have contributed to another's death. Finding a suspected cause or causes of another's demise, that do not reflect our own lifestyle may falsely reassure us we are not at risk.