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"...limit their activities out of prudence due to a potential fear of tiredness". It's not fear of exertion or activity here, but "fear of tiredness". "Tiredness", which is a downgrade from fatigue. Minimization. It seems these app developers are saying if you LC people would get organized by...

Yes, it's a time and energy saver.

Acceptance, or what I deem giving up, is the completely wrong way to deal with cognitive, and other health difficulties. What if we gave up with every problem we encounter? What kind of world would we live in. If we still had a world that is.

From the article: "The diagnosis can be made clinically, and unnecessary investigations avoided." This was arbitrarily decided decades ago to save governments money. This decision despite abnormal results found on memory testing, MRIs, orthostatic challenges etc., that go back at least 3...

They insist on calling this very debilitating disease by the light weight version, "CFS/ME".

"Wrong page." Good one! :laugh: "Third wave therapies" are for therapists who didn't catch an earlier wave...or bus, or train, or whatever... :)

Agreed. Suggestions: 1) PEM worsens the debilitation normally experienced by persons with ME. 2) ME is a disabling disease, punctuated by increased debility known as Post Exertional Malaise (PEM). 3) Post Exertional Malaise, the cardinal symptom of ME, magnifies the disabling symptoms...

Yes. The Canadian Consensus Criteria notes findings of demyelination or edema on MRI brain scans of pwME. Page 18 of the CCC Overview: "MRI brain scans: Elevated numbers of of punctuate lesions, particularly in frontal lobes and subcortical areas, suggest demyelination or...

Oh yes, very good point.

I'd pick the 3rd choice.

I'm not sure what's annoying about it. The article seems to have sort of the right gist. However, it's not a mystery illness as the title says. Maybe this is one of the annoying bits? We do know some things about ME. Unfortunately, many call this disease a mystery illness. Giving ME that...

Yes. Extra fatigue after an activity and PEM are definitely not the same thing. PEM does indeed make one feel ill. It's the term "exertional" that seems to cause interpretive problems. Define "exertion". Mainstream understanding of this term can mean extraordinary activity. Activity levels...

About the barrier to do something about LC, as @ahimsa posted earlier from the article, "Long COVID in California...", this also absolutely applies to ME. Both these diseases are very debilitating. Many pwME are too sick to campaign for awareness etc.

Yes, no masks now in our GP's office.

Ditto - :laugh::(:banghead:

We still wear masks when out and about. There are still some who wear masks in our locale, however most people don't. Even most seniors we see are not wearing masks. People are still being hospitalized here and some are dieing. It won't be long for the new variant in the UK to get here, if it...

Yes, antioxidants help me. Not all of them though.

Yes, presenting a negative picture to pwME who have had it a short time is a concern. On the other hand, many people do not know how bad ME can become: the hidden 25%. Most people see ME as a short term mild inconvenience. Omitting the worst case scenario has perhaps not done us any favors...

I had the same thought. But, maybe we would be looking at much more powerful antioxidants via prescription. Perhaps even something brand new. It would be interesting to see further studies.

Yep, I have heard of 6 month recoveries from mono. Even a couple people who were hospitalized for a time, who then recovered. Of course, most people recover from infections. So that is one big reason why we are looked at askance: "You can't still be sick!" But then, the CCC info seems to be...