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Agreed, the "no universal cure" concept, or some things work for some and not for others, may keep people on the hampster wheel of hope, spending money and energy, continually trying fake treatments.

Hi @Hutan, I know some people recover early on with ME, but I've never seen it termed "high" recovery rate. The Canadian Consensus Criteria Overview says " 5 of 6 studies indicated 0% to 6% ( the sixth study indicated 12%) of adults return to their pre-illness level of functioning." (Page 1)...

Yes, this term has been hijacked. Agreed, it could, and should be benign, just factual. However, it has morphed into a derogatory label.

The term " medically unexplained" is arrogant. As if everything is known about disease and injury. The term is a lame and cruel excuse to figuratively toss the patient in the garbge.

Our regular GPs have always been male. As have most specialists. Experience with female doctors where we both attend has been mminimal. Two instances where we both attended a consult with a female doctor were less than stellar. The first was just odd, but the other was unpleasant and I was...

@Sean Your comment reminds me of a story in Maya Dusenbery's book, Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick. Ms. Dusenbery writes about a woman who takes her son to her medical consults. Although he is youngish, if I recall...

Yes! However, I am also concerned about coercion.

:thumbup:

You are right @Trish In the real world, with these illnesses, symptoms defeat structure. This is a constant battle for pwME and LC in everyday life. This is the situation before medics get involved and work to overlay more structure. As if we don't work as best we can towards our own goals...

The traditional reaction, take the supports away. And, what about training for physicians to work with pwLC? Not a priority apparently. It would be interesting to know what percentage of residents in each province and territory have essentially been abandoned by governments and medicine due to...

Basically GET. ETA: The authors do speculate about underlying causes, but these seem to be set aside when they recommend exercise as a treatment. As if exercise will correct this complex disease.

:thumbup: I was thinking along the same lines about Maureen Hanson's findings of molecular changes in ME, vs. the BPS bunch telling pwME to believe their way to health. :rofl:

My energy, physical, and cognitive capabilities are always compromised, and have limitations, where I just come to a halt with activity before it's complete. I literally have to stop and rest right away, either due to POTS or other increased symptoms of ME. There is no consistency as regards...

@Andy Agreed. These questions are not specific, nor detailed enough for pwME. These definitions should not be so cut and dried. I think some of the crucial things to ask in these questions are can you do these activities reliably and as needed. If the dusting needs doing, can you within a...

Ubiquinol seems to boost my energy. It doesn't have a tremendous effect, but it helps a little. After about 7 to 10 days of not taking it, I become more fatigued. I've gone through this ABA cycle several times now with the same effect.

Canada has planned on accepting a large number of immigrants to fill job vacancies. The cost of housing, and supply may be significant problems for them. It has been so for some time now. Understaffing causing health care errors has been particularly noticeable to me since the pandemic...

Almost 20 years ago we attended a graduation ceremony for nurses. This was in Canada. Right out of school, several of them had signed up for nursing jobs in the USA.

Hi @Richard Smallfield welcome This article might be of interest: "Gender Disparity in the Funding of Diseases by the U.S. National Institutes of Health" https://www.liebertpub.com/doi/full/10.1089/jwh.2020.8682

And yet, in general, the significance, and effects of EBV have been downplayed for decades. Good to see this viewpoint shifting.

Yes, thanks. I'm not sure though if their term "chronic fatigue syndrome", refers to chronic fatigue in relation to other illnesses than ME, or ME/CFS; the confusion and obfuscation we have endured, and fought for decades. If they are referring to ME/CFS, this would be very good news.