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The scientists and manufacturers might also be interested in considering ME. The article mentions " chronic fatigue syndrome", but in relation to diseases other than Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.

Funny, in dismissing the very necessary biomedical treatment needs of pwME, main stream medicine is significantly assisting alternative "medicine" in its quest to make lots of money. Something IME main stream medical practitioners are not happy about.

Agreed@ Hutan. It makes no sense. Why are so many BPS arguments circular? They are dizzying.

I haven't checked the DSM, whatever # it is now, but is "burnout" actually listed as such, and cataloged as a psychiatric disorder? Self-reported "cfs" is neither CFS, nor ME, until diagnosed as such using biomedical case definitions: the Canadian Consensus Criteria or the International...

I hope this article gets some traction with the intended audience. It would be quite a positive step to have cardiologists on board. I don't know where this specialty is now as concerns ME. From personal experience decades ago, the small sample I encountered were quite disdainful.

There are quacks and charlatans everywhere. A few people have told me I would recover if I signed up for some type of human potential stuff. Another said meditation was the cure. Still someone else said a multi-level marketing supplement they sold had cured them. A few weeks or months later...

Important point @Hutan. Yes, if a practitioner seems to understand, or at least empathize with a patient/client, and promises help, for a poorly understood or maligned disease such as ME, people may flock to that practitioner, because they engender hope. In the end, the practitioner may charge...

I bought a juicer in the 90's. I used it a bit, but was too tired to keep at it. Note, veggie juice was supposed to cure me. :laugh: :banghead: :facepalm:

It's much more preferable to delete the psycho portion of the treatment and focus on developing effective biomedical treatments and a cure. Shunting people off into the "I hear you saying", and "How do you feel about that" category, does not provide effective treatments or a cure.

I've done some less fancy versions of some of these tests starting in the early 1990s. Damn near broke the bank.

Thanks. :)

I don't know if osteopaths in general think ME and "cfs" are psychological. Two of them I saw did.

:laugh: Funny the way you said it, but also sadly very true, about how medicine has seen us, and treated us for decades.

Agreed.

Agreed.

This.

I had a similar experience with diagnosis of rosacea. Although it was a person without medical training who told me it was rosacea. I had seen my doctor about something else. The spots were there plain as day, but no comment or dx was forthcoming.

Well put: "We don't rest, we stop."

Very good descriptions of what ME can be like. I hope this author writes more about ME. It would have been good to see references. It is not enough for Canada to only have 3 centres that focus on ME.

Thanks @Kalliope. I will have a look at that thread. I find Dr. Rowe's OI/POTS research encouraging.