Search results

  1. D

    Orthostatic Cognitive Dysfunction in Postural Tachycardia Syndrome After Rapid Water Drinking, 2019, Belén Rodriguez et al

    @Mij Can you expand on your comment about sweating? I note the subjects drank mineral water. Not totally sure what they mean by "mineral water". Water with minerals added in, or just sparkling water? Probably they just used sparkling (mineral) water. Some advise to use minerals to help...
  2. D

    Orthostatic Cognitive Dysfunction in Postural Tachycardia Syndrome After Rapid Water Drinking, 2019, Belén Rodriguez et al

    Exactly what I thought of right away. Output after lots of fluid is quite something!
  3. D

    "Can someone as Young as You Really Feel That Much Pain?" - A survey on How People With Fibromyalgia Experience Healthcare in Sweden, 2021, Hasselroth

    Have those who said babies don't feel pain never had kids? I've heard of this totally dumb theory. Good grief! I shudder to think of all the damage those medical personnel caused, and not just to babies. ETA: where is their common sense?!
  4. D

    Impact of Life Stressors on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Symptoms: An Australian Longitudinal Study, 2021, Balinas,Staines et al

    Have to mull this over for a while. Maybe the researchers were just saying stress makes ME worse. I know it does with me. This area of discussion is always a bit of a minefield as far as I'm concerned. Interesting to note, Don Staines is one of the authors of the International Consensus...
  5. D

    Towards a sociological understanding of medical gaslighting in western health care (2021, Sebring)

    Thank you @SNT Gatchaman for this. When I start to look for gaslighting, it's everywhere. Denying one's feelings and reality. Of course it's deeply embedded in society. ETA: And, the article looks like it would be interesting to read.
  6. D

    New Statesman article: “Society is ableist”: Alice Hattrick on gender, chronic illness and long Covid

    Interesting article. I'm glad rhe author used these term: The cultural language of illness - relates to criminality or malingering." Very true.
  7. D

    CFS and/or FM as a variation of antiphospholipid antibody syndrome: an explanatory model and approach to laboratory diagnosis, 1999, Berg et al

    Yes. Came across this back then as well. Didn't do the testing. Many of my blood draws are difficult, and I've been told my blood is thick or sticky. This despite extra hydration before blood tests. This puts me in mind of Leslie O. Simpson's research, which includes work on blood viscosity...
  8. D

    Case series of Pervasive Refusal Syndrome presenting with CFS: avoiding the pitfall of a wrong diagnosis, 2014, Herberholz, Crawley et al

    So, if sleep is fractured, and these kids have "Postexertional fatigue", why would they not have unrefreshing sleep? Doesn't seem to follow. And, these kids have PEF, and not PEM?
  9. D

    Neurochemical abnormalities in chronic fatigue syndrome: a pilot magnetic resonance spectroscopy study at 7 Tesla, 2021, Godlewska et al

    Is there scientific evidence that pwME have "disturbed mental function" in: "evaluating bodily sensations, experience of the body state, (and) pain inhibition? Do the authors mean this in a physiological sense, or just a functional somatic syndrome sense? The belief that pwME intensely focus...
  10. D

    Rehabilitation for Patients With Persistent Symptoms Post COVID-19

    Is there a risk that believing pwLC to have a functional somatic condition, ie., the BPS model, pwLC might not be screened for cardiac problems regarding rehabilitation programs? According to CBC News, two professional hockey players on one team have myocarditis from COVID. They will not be...
  11. D

    Interview with Dr. John Greally on his ME/CFS research he is fundraising for (ME/CFS advocate Liz Carlson also talks)

    Ditto. LC vs. ME; gross inequities, eh?! Common sense and ethics don't seem to enter into these decisions.
  12. D

    Pacing for people with severe ME/CFS

    Thank you @Trish for talking about est. a baseline, and then being able to expand your envelope. I have never been happy with this message. It makes me feel criticized, as in I am supposed to have accomplished this somewhere along the way. ME is not something with a simple fix. ETA: deleted...
  13. D

    Bristol Chronic Fatigue Syndrome/ME Service; Bristol M.E. Service - Peter Gladwell

    The CCC Overview, page 1 says: "In a review study of prognosis, 5 of 6 studies indicated that 0% to 6% (the sixth study indicated 12%) of adults return to their pre-illness level of functioning....Objective postural cardiac output abnormalities correlate with symptom severity and reactive...
  14. D

    Pacing for people with severe ME/CFS

    My experience with the CFS label, and the case definitions in the 1980s and 1990s, was that they in no way reflected, or covered many of my symptoms. I would get a polite, but puzzled look from my health care providers when I recounted symptoms not included in the thinly detailed CFS case...
  15. D

    Pacing for people with severe ME/CFS

    I'm not sure about the continuum theory. Will consider further. My understanding is whether it was accidental or not, the term "CFS" conveys this disease as of little consequence, as well as short-lived. There were designed, and redesigned case definitions that eliminated some of the more...
  16. D

    Breathlessness and air hunger in ME/CFS

    "Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Clinical Case Defintion and Guidelines for Medical Practitioners An Overview of the Canadian Consensus Document", notes on page 6, " Breathing dysregulation include breathing irregularities, sudden attacks of breathlessness, exertional...
  17. D

    Healthcare - Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: When Suffering Is Multiplied - Komaroff

    It's my understanding progress in this area, of course as well as many others, was delayed: 2003 Aug;326(2):55-60. doi: 10.1097/00000441-200308000-00001. Abnormal impedance cardiography predicts symptom severity in chronic fatigue syndrome Arnold Peckerman 1, John J LaManca, Kristina A Dahl...
Back
Top Bottom