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CBT-F could be a substitute for the Oxford case definition. Just fatigue for 6 months, which CBT will be just dandy for. Could say something else about what CBT-F might mean...;)

Thank you for posting this @Dolphin If some who are able could forward the article in the post @Wyva did, (just above my post here), to their political representatives, it might help with awareness. Individual's stories are often more easily related to. We know pwME commit suicide. Now...

So...have I got this right: FND the same as, or as near as possible to MUS has been studied using neuroimaging. Abnormalities have been found using neuroimaging, but even with physiological evidence these conditions are still labeled FND. If this is the gist, then it might not be long until...

@Invisible Woman, absolutely not getting you wrong. You are totally right, the system isn't ideal; it may not work for a significant number with legitimate complaints. The system doesn't necessarily work as the brochure says it does. After all, professional bodies are a body of one's peers...

Yes, @Invisible Woman, corrective action or prevention of practice may be carried out. Many likely don't know about the behind the scenes machinations of professional bodies and discipline of members. It sometimes seems there have to be several serious failings before some practitioners are...

Some observations, and some speculation as to why gamers are better than scientists at catching fraud: - post secondary institutions encourage connections among related disciplines - these connections may later help one's career, business, research funding etc. -there is more at stake for...

"...a larger and intentional investment in POTS research..." (my bolding) Specifically allocated, and commensurate with disease burden - that's step one. Just guessing here, but is part of the reason POTS has been under researched and underfunded, due to the narrow view that POTS is a...

"Then you are not allowed to leave." Threatening confinement? Shocking.

@Parsnip Thank you for your very detailed info on this appalling activity. How awful for you to have to go through it. It was very brave of you to write this down. It is so sad by doing so, you re-lived this experience. This definitely smacks of a cult. And, contravention of basic human...

Agreed.

@rvallee Absolutely agree. For many, the phenomenon of LH COVID was not a surprise attack. The myth that everyone recovers from these diseases is very harmful. It is interesting how willfully sightful our society can be about the dangers of some viruses, and recognize the potential for...

The author also notes the proselytizing done by some in the mental health field to convince those in medicine, and others that ME is psychological condition. Thereby, unfortunately tainting the reputation of pwME. It should be said that it is very incorrect to view those with psychological...

Excellent article. As the writer here says many witn ME know more about their illness than physicians do. I understand that can be the case in many other circumstances. Patients become experts in their own area of interest. Several years into having ME, to be told by a physican my disease...

Yes, indeed.

Thank you so very much for this welcome and heartening news.

@Medfeb @Denise Yes, I recall the funding was $1million. I believe there were many volunteer hours involved as well. I don't know if NAM has a broad enough mandate to look at the general state of quality of life now for pwME. Nothing is significantly different from when NIH did it in a few...

Yes, it was Pfizer. Hope to not feel so noodle - like soon. It would be interesting and maybe a bit illuminating if a study was done for pwME, pre and post vaccination. Re certain blood markers, e.g. cytokines etc.

@mango I'm sorry to read about your exacerbation from medical investigation. We do NOT need any extra burden, especially from a system that people turn to for help. :( :hug:

Had second COVID vaccination almost 2 weeks ago. First 2 or 3 days were just normal ME symptoms. Feel like a cooked noodle for the last 10 days or so. Very weak and fatigued. ETA: Felt exactly the same with the first shot. ETA#2: If I recall correctly, a recent Globe and Mail article said...

Very interesting. Is this product available yet? Maybe still in development. If it is available, it's probably not OTC. Immune suppressants for IBD are definitely a mixed blessing. Hopefully this, and similar products might be game changers.