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Thank you @Dx Revision Watch Good article about pain. But what also stood out as a concern for me is the fact quacks and charlatans are gleefully "sharpening their knives", and in some cases literally sharpening their knives in order to "treat" more desperate ill people. Long COVID is the...

Concerning concept: still hanging onto GET, "let's just make it custom, or GET Lite." Liked your comparison to thalidomide, @Mithriel. Will there never be an end to trying to force very ill people, people who become sicker with GET into this regimented control? Well, I do know the answer...

That is awful. I hope Carol and her family stay safe. Sadly, and appallingly, Canadian female politicians face the same issues. Don't know specifically about threats against male politicians here in Canada, except a recent one against our Prime Minister. I've no doubt social media threats...

First Clinical Study of the Safety and Blood Levels of a Human Monoclonal Antibody (2217LS) Against Lyme Disease Bacteria in Healthy People, 2021, MassBiologics, Phase I Study Type : Interventional (Clinical Trial) Estimated Enrollment : 48 participants Allocation: Randomized Intervention...

Thank you @MSEsperanza for posting this. And, thank you to Ian Stirling for his letter to BMJ. (Can't recall if Ian is on this Forum.)

Exactly!

Yes, @Wonko PwME seem to be ascribed magical powers where we can make all kinds of symptoms happen. Of course, pwcancer, pwheart attacks, pwulcers, and others were told they somehow thought themselves into their disease. Early on I was blamed for causing my ME by being a type A person.

Have patients with other diseases ever been so vigorously maligned? Difficult to quantify, I know. MS comes to mind, but I don't know enough about its history. I understand once brain abnormalities were found that put paid to that notion.

Exactly! As much as possible continue: work, family life etc. I was told I would recover in one to three years. I've said before, I had ME for 6 years by the time I was told cfs only lasts one to three years, and that I would get better soon.:banghead: Six years from the start of ME until it...

@Penelope McMillan Thank you!

I am not aware of any proper science based evidence proving there are efficacious models of rehabilitation for pwME.

Indeed, less social contact = less flu and colds, less asthma flares. The Pandemic will provide research opportunities for decades.

Yes, @Hutan I had no idea MS can start in childhood. So very sad, to be robbed so early of what is considered a normal life.

A predicted outcome from the pandemic and lockdowns was less air pollution. It's known that breathing problems are caused/exacerbated by living near busy roads. So, has medicine/science harbored another refrigerator mother scenario? Mom isn't cleaning the house enough, so the dust has caused...

Hiding in plain sight. I used to think people would think I was a slacker because I might have been out and about on a weekday afternoon. Then I told myself I could as easily be a shift worker, so not to care about what they think. I agree, @Leila ME is the elephant in the room in social...

Fantastic description. "The next PEM tide closes over our heads", is so descriptive of the feeling. The inevitability of a crash as the symptoms get worse. Of having no other choice but to spend a lot time supine. Pacing, the only thing we've got is such a fragile preventive. Like balancing on...

Haven't read all the article yet, but the estimate of 1 to 3 million US citizens affected has me wondering why this condition has been so neglected. The potential number with this disorder certainly has an effect on the economy, a viewpoint that seems to interest governments. Although one has to...

Hi @Invisible Woman Yes, it's difficult to sort out which issue is causing what. With the complication of ME, I can't differentiate the ME fatigue from my hypothyroidism. If something else is going on that causes fatigue it takes me a few days or longer to distinguish it from the ME, because...

Thank you to these researchers. Interesting. I hope this research is followed up on. I don't know the percentage of pwME with hypermobility and without. I'm not sure if hypermobility can be a separate diagnosis from EDS, or it only falls under the EDS umbrella.

My Hashimoto's was diagnosed in my early 20s. Other than allergies, my first encounter with a long term disease. The fatigue now reminds me of the fatigue then. I was so weak and tired, with the hypothyroidism I would just come to a halt, and had to rest.