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Thank you very much, @Kalliope Cheers!

So, when I try the link, I find several other articles, but nothing related to the quote. Could someone direct me to the correct article? Thank you!!! :)

Wow. That last paragraph is amazingly right. How did that happen???! Others may only see someone who is benefitting from being off work, and getting social assistance for goofing off. The imagned secondary gains for being ill. Nothing could be further from the truth. The losses with ME are...

Agreed. Your words especially hit a chord for me regarding stressful activities versus fun ones. PwME, can't set aside feeling horrible to go out and have fun. That is, if a pwME is not bedridden, and is able to go out of their home. All the symptoms come with us. There's no holiday. ETA...

One of the most uncomfortable sleeps I've ever had was during my sleep study.

Very good idea to provide the social security payments here. Appalling, but not surprising that some doctors still see pwME as malingerers. Good grief! They should read up on some of the research first, and reconsider making uneducated, nasty comments. They can check out the 2015 IOM/NAM...

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Good poll @DigitalDrifter Experience changed my mind. Maybe there is a tiny smidge of something to the psychosomatic concept of illness. However, it is likely all BS, and the remainder may fall with more knowledge and technology. I've seen stress debunked as the cause of ulcers. Probiotics...

Your treatment has been neglectful, and cruel. It is shameful! You are so right about care and consideration. At least it would be something. Something that most citizens expect, or hope for. It's the lowest bar in medicine. My experiences haven't been as physically cruel, but I have...

Thanks for this @Amw66 I've used ubiquinol off and on for 9 years. It does seem to help my energy a bit. However, I take quite a bit more than 100mg/day. ETA: I didn't initially use ubiquinol for ME. The reason I've used ubiquinol off and on, is the price. It's supposedly a more bioavaiable...

You are right! There is no treatment for ME!

From the article: "Services are no longer able to provide a full range of evidence-based therapeutic interventions." I haven't read all the postings so far, but I would say: What full range of therapeutic interventions are they talking about? There are two interventions - CBT, and GET...

Exactly.

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Agreed. But, it's where the money is.

Absolutely! :thumbup:

The authors advise GET is collaborative, negotiated and symptom dependent. My understanding about GET, at least as it is used for CFS and ME, is that symptoms are to be ignored. If symptoms worsen, just carry on with the GET. Part of the belief system the BPS Movement has about ME/CFS is that...

Agreed. Coincidence. Not cause or cure. But we all, at one time or another label something the cause, when in fact it isn't. And, so difficult to convince someone that what they believe is the cause, is not.

Agreed. I looked at the TCW "About us" page. Their motto: "Defending freedom", fits in very nicely with the anti-vaccer, anti-masker group who blocked two international border crossings (Canada/USA), and invaded part of Ottawa last year. Ironic, this Canadian group's "fight for freedom", that...