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I always think about these type of studies, that it would be great if the researchers turned their interest to investigating pwME, using the same tools. It often seems so close, and yet so far away.

Good to see some monitoring of this program. Not just assuming it will be effective. Why has psychological distress and suicide not been reduced? Could it be because more practical help is needed? Problems in living such as poverty, disease, violence and abuse, low education, lack of life...

:thumbup:

At least the authors are recommending all pwLC in clinical settings get a Nasa Lean Test. PwME are still waiting for this type of recommendation from other than biomedical ME experts. It's been decades in the desert.

From the article: "...learning new strategies..." IMO, there aren't a lot of various strategies or ways to manage ME. There are not a lot of options. If one has been dealing with this disease for a while, often the pwME, or the caregiver will have tried the limited "strategies" available...

From the Conclusion: " Our results demonstrate that prolonged endothelial dysfunction is a hallmark of PCS, and impairments of the microcirculation seem to explain ongoing symptoms in patients." It appears this study adds some credence to the theory regarding circulatory problems in ME.

Aside from being far too debilitated to even contemplate the journey to watch ducks on a pond, there are reasons why watching ducks on a pond could be a hassle, and not an uplift: 1) no pond nearby 2) no transport to a pond, 3) the pond is now a condominium development, 4) no ducks; they have...

Agreed.

I suspect the minimizing disinformation in public health info is relatively widespread. Having not done an in-depth study, I can only guess how common this is. Of course, we are very painfully aware of this downgrading where ME is concerned. Concussions are another case. This condition has...

This is surprising, given the direct connection with the IACFS/ME.

Yes, why are the biomedical-leaning members and attendees of this group's conferences etc., not rising up in protest?!

Ditto. :thumbup:

Agreed.

Yes. Woo-woo obfuscation. "Ecological momentary assessments." Good grief. If writing in a diary is an "ecological momentary assessment, what's a shopping list? Or an email? Or posting here?

@Hutan Your critique finds errors and omissions that remind me of the various problems brought to light in the PACE trial.

"...preyed upon..." is the best term to describe what a lot of practitioners do, who offer smoke and mirrors to cure such diseases. :thumbup:

Dr. Jason's summary of how this can affect pwME physically and emotionally is right on.

Once again, we have people who have long term symptoms from an infection. However, looking at websites about this infection indicates the understanding is it takes healthy people about 2 weeks to recover, no treatment required. Exceptions to the rule, even numerous exceptions are still...

It is good to see articles conveying the seriousness of ME. It's curious though when ME is spoken of as time limited. From the article, " Many suffer for ten years or more..." This sentence goes on: "and only five percent recover". On the one hand, suffering for ten years probably sounds...

Good description/definition of BPS people, @Hutan. ETA: Pablum purveyors.