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"Also of note, three of the patients who registered relapse at 3–4 years still reported a 2-fold increase of their percent function levels as compared to baseline." I find this fascinating. Suggests to me that ME-worsenings can be caused some coordinated immune dysfunction, and that disrupting...

"Ten of the 12 patients (83.3%) positive for HLA alleles DQB1*03:03 and/or C*07:04 had a response, compared to 12 out of 28 patients (42.9%) negative for these HLA alleles (OR = 6.67; p = 0.028; Figure 6)" Small sample size, but pretty interesting finding no?

"At baseline, only two of the responders had part-time work participation. During follow-up, at least nine out of 22 responders returned to either part-time of full-time work or studies." Finally some objective outcomes :inlove::trophy@:cry: This looks very promising, I think its very hard to...

"The median time to first response was 22 weeks (range 2–42 weeks)." Its interesting that the effect is delayed also with cyclo, did u usually see that too with your patients @Jonathan Edwards ?

What long term concerns did u find occur other than bladder cancer in ur practice?

Cant wait to read this! :thumbup::party:

This is going to be a train wreck of a study Its impossible to do research on LP due to the very fact that the method itself demands of the participant that they ignore symptoms, hence they cant trustfully report their actual function. And subjective outcomes is already a huge problem in...

Nothing I ever experienced pre illness was really similar to what ME feels like. The combination of severe fatigue, brain fog, fasciculations, orthostatic intolerance, post exertional malaise - I have never experienced. What do u call that? Further complicating the matter is that ME-patients...

Damn it :thumbsdown:

I think u have to know what to filter, if ur referring to the plasmapheresis-study by Scheibenbogen et.al

Yikes I was withholding any excitement for this study until Jonathan reviewed it, seems like it was an good idea.. If we look away from herpesvirus for a second They state that ME is due to a "multisystem, proinflammatory, cell danger response that protects against certain RNA and DNA virus...

Well, Be careful @dave30th, with giving them sarcastic research ideas. Apparently they will get approved and funded by the government..

Only two follow-up visits: "care as usual’ implies that the relevant individuals would not receive any healthcare for their CF condition in the follow-up period apart from the follow-up visits in the present study." Its hilarious, or rather, close to to fraudulent, to not raise the question in...

They have all been told multiple times that the study was only ETHICALLY approved, not officially excused for not being a work of fiction. But this does not fit their narrative

The government actually funded this madness. Let that sink in. Okay lets have a look at this magical musical treatment They say, "Evidence suggests a beneficial effect of cognitive–behavioural therapy (CBT) in adults...", and then reference PACE :bored:, "... and adolescents", referencing...

Thats a great explanation @Mithriel, and has also been my experience.

Sure, but there is always someone who has it worse. Does not make it any less of a feat to endure the illness for so long

25 years.. Incredible feat of character:trophy@

Just finished watching, really enjoyed it. Its mindblowing how complex the machinery is.. and viruses are really fascinating. Wish there was more cellular thrillers like this out there!