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I agree Personally for me it manifested with exercise intolerance with heavy cardio, until one day after football where I just collapsed in the street. Even though it had been gradual before that, pushing over the limit made the worsening sudden. It also means there must have been a sudden...

Good question Jonathan will be able to give an professional opinion, but loads of immune dysfunctions are "silent", you only see the aftermath

Looks like solid work again from Fluge & Mella, especially the sample size :emoji_clap: They say: "A dysregulated activity of CD4 positive T lymphocytes, the principal cell type interfering with HLA class II alleles, have been discussed as a central mechanism in ME/CFS (42)" Maybe I should ask...

I mean, they kinda did: "The pathophysiology of CFS, which is not well understood" I guess the question is if one should conclude anything about what systems might be affected based on several studies that are not replicated. The answer is no I guess, but that's probably why IOM concluded it is...

Well actually! ">October 28, 2016</a></blockquote> <script async src="https://platform.twitter.com/widgets.js" charset="utf-8"></script>

True, Ill try it I`m a bit of a sissy when it comes to trying new things for ME (even though I tried ritux happily), or like, I feel I have to read up a lot before doing it, so I just end up not trying anything haha. Would def start on a low dose :)

I wholeheartedly identify with your thoughts here. I have found it profoundly difficult to contain myself whenever I feel like I`m not actively undergoing a metabolic storm. Even when in crashes I can barely walk, I will go and do something out of sheer existential stubbornness

Exactly! We`re happy for those little things haha.. Kafkaesque

Interesting stuff, @stuck, thanks for writing:)

Yea i suspect its really hard to judge if you dont have an obvious effect. Like you might be doing a little more than usual because you assume you get more energy, and then you get PEM.. Stuff like that. So it can be hard to know if the supplement caused u to crash, or if u just overexerted...

Cool :thumbsup: Did u try them together?

I think when I considered it I was just loosely wondering if it could lower brain fog. No good scientific reason hah

8 % is a lot! Thanks for sharing the study. Ill give this a shot :) Did u take Levocarnitine?

These are all supplements I have considered during the years.. But ive forgotten a lot about what ive read about them haha.. I know Fluge & Mella experimented with L-Carnitine, but I think some of the patients had side effects if remember correctly.. Has anyone here tried any of these, either...

Canadian criteria :thumbsup: Time to check if there is a connection between peripheral endothelial dysfunction and cerebral hypoperfusion?

Really great news! :thumbup:

Previously, somebody usually writes a transcript to one of the facebook groups :) Hopefully there will be a live-stream though. Important when so many cant travel and want to listen!

Incredible line-up (lol im speaking like its a festival) Think I have to go listen to this, would be great to ask some questions or meet some of them in person

I don`t know if I have the words to describe how physically and psychologically fucked up it is There is a disconnect between "me", i.e the cerebrum, and the function of the rest of the body that is hard to describe. I feel like a ghost in my own life, a lot That`s not really the worst part...

To me the phase 3 trial placebos told me that we cant successfully study this disease without objective markers like steps or school/work. When you have ME in moderate/severe, very small increases in function can completely change how you perceive the level of suffering and function You have...