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  1. Marky

    News from Scandinavia

    Thanks Kalliope I wonder if they will find anything interesting from the giardia patients specific to ME, but my guess is its just a disease trigger like much else
  2. Marky

    MS research versus ME/CFS research

    There would be so much more funding if people were scared shitless to get this At the moment most people haven't even heard of ME, and those who have often think its curable by some tin pot hat treatment The fact is ME almost completely strips you of all humanity, as you are unable to do...
  3. Marky

    Cyclophosphamide

    Is there any data on what immune cells cyclo typically kills percentage wise?
  4. Marky

    What is this?

    Hey Jonathan! Dermatologist was unsure what it was too, and didn't think we would get any answers from a biopsy, so we just let it slide It has been occurring after i did rituximab, maybe thats it? I dont think its anything serious either, as i don't have any symptoms going along with it...
  5. Marky

    What is this?

    Helluu :emoji_alien: Ive been getting these on and off for a year. The darker red area has been there permanently a bit longer. If i drag my finger across them they pale (blood related?), and I often wake up with it. I get it sleeping away from home too, so it dont seem related to bed bugs or...
  6. Marky

    Bone, not adrenaline, drives fight or flight response

    Oh no.. Now the psychobabblers will suggest removing all our bones to turn of the stress response :nailbiting:
  7. Marky

    Dogs Are Dying Suddenly in Norway

    Theres no permafrost in Oslo^^ It would be a weird place for an ancient virus to appear first
  8. Marky

    Dogs Are Dying Suddenly in Norway

    Its not fabricated by the media though, the Norwegian veterinary institute and Norwegian food safety authority has not been able to find out what disease causes what looks like severe gut inflammations in the dead/sick dogs and so informed the media about it
  9. Marky

    A Messiah in the Norwegian health system? Lightning Process and the Norwegian medical establishment - Blogpost by Nina E. Steinkopf (2019)

    "PP and LL are affiliated with the Lightning Process.Therefore the research team has expanded to include those with no direct interest in Lightning Process" This is a joke right? Surely there must be some rules which don`t allow publication of such an obvious case of commercial bias?
  10. Marky

    Denmark: Interview with Per Fink in Dagens Medicin

    I have so much to say about this stupid functional disorder construct, but it feels like a waste of time dissecting something that`s made up Go get em Jonathan!
  11. Marky

    3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

    Thanks for that great summary @Michiel Tack I`m excited for the cyclo publication, nanoneedle-development, and the metabolites Davis has found might be very relevant coming from severe patients. The possible treatments Davis has found is also interesting, but I have no idea whats going on...
  12. Marky

    An Isolated Complex V Inefficiency and Dysregulated Mitochondrial Function in Immortalized Lymphocytes from ME/CFS Patients Missailidis et al. 2019

    Yes that was really interesting, i read it like a mystery crime thriller set in the body
  13. Marky

    An Isolated Complex V Inefficiency and Dysregulated Mitochondrial Function in Immortalized Lymphocytes from ME/CFS Patients Missailidis et al. 2019

    What a great comment, so many interesting ideas, but over my head unfortunately. What I did wonder though; ur saying the genetic makeup of stem cells/early immune cells can permanently change because of environmental (in a broad sense) factors? And regarding what u said about some irreversible...
  14. Marky

    An Isolated Complex V Inefficiency and Dysregulated Mitochondrial Function in Immortalized Lymphocytes from ME/CFS Patients Missailidis et al. 2019

    I always feel like my life is going great when I`m lying on my back after making dinner, picking potatoes from the plate with my hand, cus I`m completely devoid of human function Very few sees just how nightmarish ME can be, and only us feel it too. Luckily I`m too exhausted to self-pity
  15. Marky

    An Isolated Complex V Inefficiency and Dysregulated Mitochondrial Function in Immortalized Lymphocytes from ME/CFS Patients Missailidis et al. 2019

    Im waiting for the layman version, but was wondering if this could be relevant to the slightly elevated risk of non hodgkins lymphoma for ME-patients?
  16. Marky

    Trial of CT38 for ME/CFS by Cortene Inc.: big claims being made...

    This research seems like a complete shot in the dark.. How did they get funding without any data backing their hypothesis?
  17. Marky

    Andy's attempt to create a reasonable descriptive model of ME.

    It certainly feels that way! Maybe our minds are more active at night giving us PEM :P
  18. Marky

    Andy's attempt to create a reasonable descriptive model of ME.

    Some important questions i often think of.. 1. Why do most ME-patients get PEM so much faster when e.g doing the same mental activities standing or sitting, compared to lying. What does this indicate in terms of disease mechanism. 2. How is it possible to exert yourselves into a permanent state...
  19. Marky

    Singing and gargling

    I'm a singer who gargles in the shower for warm-up purposes Of course it has no effect on ME whatsoever :emoji_upside_down:
  20. Marky

    Organ donation and blood donation

    Crazy.. Did it happen straight after the donation? ME does run in families so
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