Search results

  1. Marky

    Andy's attempt to create a reasonable descriptive model of ME.

    Good question, that's very weird to me
  2. Marky

    Anyone with SVT (supraventricular tachycardia)? Have you used Kardia Mobile?

    Wow Kardia IS really cool! I didn`t know there was the technology for programs to read EKGs. I can understand ur elation Dont take my word for it, actually i think clotting is only a concern with atrial fibrillation because of reduced output
  3. Marky

    Anyone with SVT (supraventricular tachycardia)? Have you used Kardia Mobile?

    Hey i get ya its a tough call to make. I guess it could be worthwhile to assess your risk for clotting, thats the main concern as far as i understand when it goes on a long time! Grats on catching it on a recording:) Its hard to do when its random..
  4. Marky

    Anyone with SVT (supraventricular tachycardia)? Have you used Kardia Mobile?

    @ahimsa thanks for the answer:) I believe i read that its pretty common that they last longer the longer they are left untreated (with e.g ablation or meds). The ones I got lasted from 30 sec to 1 min i dont remember exactly was pretty stressed out :p "I thought that the words rare/sporadic...
  5. Marky

    ME/CFS success story: Lightning Process on Youtube 2019

    Coincidentally that girl is becoming a LP-practitioner.. Blatant scam
  6. Marky

    Anyone with SVT (supraventricular tachycardia)? Have you used Kardia Mobile?

    I had these when i was jogging with ME, and therefore did a holter which confirmed them. Apparently its not uncommon in ME-patients: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5772628/
  7. Marky

    MS society funds study of immune system to understand why pregnancy can alleviate autoimmune conditions, possible ME relevances

    I was hoping u would chime in! That makes sense, I didn`t even know foetuses had working immune systems. So the t-cell shift is not proven u say, or if it is its happening for some other reason? A question that came to mind.. Why dont the immune system of the mother disrupt the foetus...
  8. Marky

    MS society funds study of immune system to understand why pregnancy can alleviate autoimmune conditions, possible ME relevances

    Yea it is what happens apparently https://me-pedia.org/wiki/Pregnancy and https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5025626/
  9. Marky

    MS society funds study of immune system to understand why pregnancy can alleviate autoimmune conditions, possible ME relevances

    Very interesting research Even though it would be hard for me to get pregnant
  10. Marky

    ME Association: Very Severe ME: It’s Time for Something New! By Greg Crowhurst

    That`s a terribly long time.. Two lives put on hold.. So much respect for them both.
  11. Marky

    B-Lymphocyte Depletion in Patients With ME/cfs: A Randomized, Double-Blind, Placebo-Controlled Trial (2019) Fluge et al

    Yes.. Haha Ive had a worsening this summer after gradual exercise, and I have ended up doing whatever makes me feel bad twice because my thinking is like "there is NO way im going to bed unable to finish the dishes", so I go back to do it only to get PEM again.
  12. Marky

    Spinal MRI results

    Thanks @borko2100 @Wonko @TigerLilea! Yea my GP said she looked it up and it was assumed to be normal. I just thought it was early when ive just turned 29 to have a dehydrated and DEGENERATIVE back :D Well, well.. At least I cant do much walking anyway.. I was curious anyway after all this...
  13. Marky

    Weekly collapses

    Hahaha as u can see I am slightly brain fogged when I wake up! Goodness me
  14. Marky

    Weekly collapses

    Thanks for the link! Yea its funny its called flee or flight-response because i have been unable to do anything else than plant my body on the floor when I get these surges. I would have been eaten by dinosaurs so easily back in the day.. Interesting about the beta blockers, and nice that u...
  15. Marky

    Weekly collapses

    Yea ive decided I have to try to "aggressively rest" (funny term), which I am notoriously bad at. Every time i fail at doing something, I will try doing it again straight after out of annoyance.. Ive also forced myself to travel to band practice, which is kind of ridic to do in a period like...
  16. Marky

    Weekly collapses

    I guess i could ask for another holter test, although I dont think its a heart issue it might be a place to start i guess! Thanks
  17. Marky

    Weekly collapses

    Hey! Yea I`m male. I did actually check blood adrenaline levels back in 2014 cause i was having similar episodes when I first got sick. They were normal.. I think that the ME is causing this somehow, cause they happen when my ME is bad. But I have no idea how.. I read that with adrenal tumors...
  18. Marky

    Weekly collapses

    Thanks for sharing, and i could not agree more @Snowdrop! The episodes are so intense and out of the blue that I cant understand how my thinking contributed to it. Obviously your train of thought can lead to phobias etc, but I dont think u can think yourself into having these attacks. It just...
  19. Marky

    Weekly collapses

    Yea we don't really know what to do. I`m legit clueless as to why this is happening I just wanna feel like shit again.. :rofl:
  20. Marky

    Weekly collapses

    @Daisy That sounds similar! I dont have high bpm when standing, but I do get higher blood pressure upright (both kinda does the same thing?). Keep me posted on what they tell u:)
Back
Top Bottom