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Even the people with motor neuron disease get questioned by these guys :woot:

I totally expected this to be 3 recovery stories from LP or the like, pleasantly surprised!

Really intriguing hypothesis Jonathan! Something like that would make more sense of the recoveries to me.

I must say Jonathan raises some good points.. Over the years we have had so many anecdotal recoveries, and while I don't doubt most of the recoveries in itself (including Jen and Jeff), we cannot know without research what actually caused them. Already I am seeing on FB-groups ME-patients...

Thanks for clarifying that, I thought those were symptoms that could arise from disruption to transmission of nerve impulses

Wow! Super happy for her, thats crazyy The more i read studies and evaluate anecdotal recoveries the more confused i get not gonna lie.. It makes sense though that some ME-cases should be due to brainsstem/spinal issues. Certainly a lot of symptoms can stem (he he) from there, on the top of my...

That was a great article. It always feels kind of unreal to me when I`m reading something thats not mind over matter related or concerned with shaming patients

NK cells research in 2019:p Tbh its a little hard to read without the relevant education, but i saw on wiki that TRMPM3 is assumed to modulate glucose homeostasis, so if they found that it`s impaired in NK cells could it just be that its a downstream effect related to energy failure like we...

Sounds just like my progression too..For a year I just wasnt feeling right, and training seemed to make me feel worse. Weirdly fatigued at the end of the day. I actually managed to get an A when I then eventually got full blown ME at uni, which im pretty proud of, but that exam was one of the...

With this particular study I don't feel it`s unfair because it`s so blatantly apparent that the method used is bizarre. What is the reasoning behind thinking that rats will get ME by splashing in water? I mean rats live in the sewers just fine, but the wastewater isn't 1 celcius like in this...

I think we would have to know where in the disease mechanism chain whats apparently in the blood is, for such an experiment to potentially be useful. And even then, as u point out, its difficult to make sense of any potential symptoms in rats, and compare, due to the fact that they are not...

You can`t give rats ME when we have no idea what it is.. Pointless and cruel research

Thats crazy. Cancer is such an asshole

Only watched Ron`s talk, but very happy that the nanoneedle-paper will get published! Seems like something concrete enough that will get other researchers interested in investigating what might be going on. Anyone know if it will have to get replicated again, or didnt he say that theres is a 1...

I haven`t gone through the individual data yet, but that effect should disappear anyway in the long term follow up?

Might also have been more mild cases in PACE considering the criteria they use? Also didn`t a lot of patients drop out of PACE for undisclosed reasons? I dont remember exactly

It`s probably worsening due to activity imo, and the authors thought it was too.

Regardless of the result.. This is how u do a study:thumbup:

Thanks for the suggestion! Gonna watch it now. So many similarities in the MS-story, they`re just far ahead in terms of research (although obv. not where they want to be yet)

*Inserts psychobabble* Dear Jonathan. It does not matter if they get it right, that is not an argument against a psychosomatic origin - because the body/mind is an interchanging entity! What came first? The excruciating pain, or the thought of it, that ultimately very well might have manifested...