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Great blog! :thumbup:

Nice work! (But I'm sad that it is necessary.. This should be clear to the experts.)

And the six months follow up in the study might not catch the fluctiations.. It's not "long term follow up" with a disease like this.

Thanks for your work, I wish dieticians would do the same :)

It does, but explaining why is crucial, else we'll just hear about how it is a validated study design yada yada yada... Regarding your last point, I don't think the problem with people claiming PACE is ok due to HRA saying so is because they're bad at statistics, they just don't understand the...

The problem with this would be the difference between different scientific fields, and a difference of opinion about what is important to research. For example, blinding will be hard/impossible in some fields due to the nature of the interventions used. And how the control group should be...

Great point :)

This. Is the statistician analyzing objective or subjective data? Why can't they talk a bit more about the outcomes they are interested in and how they will be collected..? An independent statistician won't help with bad data.

Forskning.no has written about the study today :https://forskning.no/sykdommer/me-pasienter-ble-bedre-av-kreftmedisin/1682544 . I liked the article except they got in a weird sentence about people being screened for ME often actually have a psychiatric disorder, and thus people in studies may be...

Thanks for correcting me, I'll just quote rvallee :)

What I meant by that is they didn't apply to an ethical commitee specifically for SMILE. There was something about previously aquired approval for some other thing I don't remember. From Virology blog: Remarkably, Professor Crawley and her co-investigators decided that this school absence study...

Those of us who improve don't know how long an improvement lasts. I improved for about two years (with the occassional days/weeks of PEM), had one-two years of high functioning where I really had to push myself to get into PEM (so the disease wasn't really gone, but in my day to day life I...

But even if REK looks at the method, they are primarily an organ that looks at the ethics. And if the method can harm participants or not. Yes there's something in there about the research being valid for the future, but different methods have different goals and not everyone is concerned about...

It's kind of telling how LP is not mentioned explicitly, it's just a "three day Intervention".

Yes, but to get this funding the project has to (among other things): "The doctoral project is to help to generate knowledge that is relevant and applicable to public actors and their users. It is important that the doctoral project leads to new insights in areas where there is a great need for...

I still maintain we can't say this for sure, but we don't have to discuss it further. Nothing to be sorry about.

But we don't know if it's not higher. We don't even know if the people in these studies (that may or may not have ME as you point out) have relapses after the data has been collected. We don't always know what "recovery" means, and what sort of coping techniques that may be enabling people to do...

Well, SMILE didn't actually show more attendance in schools now, did it? And that would be the equivalent of the goal here of getting adults back to work? Not to mention the whole thing about the study being fit for retraction. If this gets any further it is beyond frustrating. That...

Now you are forgetting that the pesky patients go doctor shopping if they don't get the diagnosis they want (or worse, get told they aren't sick!) :whistle:

As @Kalliope says this will vary between countries. Norway is not exactly an active nation, but 2/3 of our population reach the daily minimum criteria of 30 minutes of "moderate activity" set by the health department. I'm mild and my average step count in a month can vary between around 1000 to...