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So as ever, they invent a term with a clear and obvious meaning of the person voluntarily choosing how much effort to make, then pretend it doesn't mean that at all. How stupid can they be?

Me too.

"My understanding is that in ME the situation is similar, in both forms, except that whereas in flu unpleasant symptoms occur within a couple of minutes (plus maybe more payback after an hour or so) in ME the reaction is delayed and can be very long lasting." I don't think the distinction is as...

Have I got this right? Surely highlighting in the abstract any hypothesis where it's support depends entirely on a single tiny study using a test not validated for that disease, where the p value only just falls below the already rather generous 0.05 level, and where the exclusion or inclusion...

Isn't that just the numbers of participants they had data for?

Wessely has influence in Sense about Science, and they awarded him their John Maddox prize in 2010 specifically for his ME/CFS work and standing up for science against attacks. The whole thing's a bad joke.

What on earth are Garner and Young doing on that panel.

Highlights • Cochrane reviews took a median of 2 years to publish after publication of the protocol. • For 11% of reviews, the time from protocol to review publication was more than 5 years. • Cochrane reviews have been publishing slower in the past 5 years than previously. • A large...

I was a teacher, able to work part time with ME for a while, but it made me much sicker. When forced into ill health retirement the consultant my employer sent me to for the ill health pension report told me that even if my health improved, I should never go back to teaching. The combination of...

Some posts have been moved to a new thread: Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al To help navigation between the threads, links have been added to the first post in each thread. Please use the contact moderators button on any posts that you think have...

Hi Deanne, both my daughter and I have had ME for many years. We have both found that are spirits are raised when we do something creative, like art or creative writing, both of which can be done in bed and in small snatches. If either of those appeals, there are loads of online resources to...

I think we were all misled through most of the pandemic by government rules about 2 metre gaps between people. That was, as I understand it, based on droplet spread infections, where if someone sneezes or coughs droplets are likely to fall to the ground within a couple of metres. Since it was...

I think they have invented a 'symptom' and called it effort preference. It's not a symptom, it's an artefact of false interpretation of an anhedonia test inappropriately used. I'm really not clear what the 'it' he is describing refers to. No wonder patients use different ways of describing...

Not sure whether this Medscape article by Mirian Tucker has been posted. ME/CFS Experts Express 'Dismay' at Aspects of NIH Study Miriam E. Tucker February 28, 2024 She quotes comments from Bateman and Yellman and from Nath. I thought this section from Nath was interesting (to put it politely)...

Peter White, the lead author of this article and one of the other PACE lead authors, Michael Sharpe have spent over 30 years doing all they can to disappear the serious illness ME/CFS into a general fatiguing condition they attribute to fear/avoidance of exercise and deconditioning. Apart from...

I'm sad that Tom wasn't awarded the degree, but it's great to see so much support for the nomination. Thank you Robert for all your work on this. And huge thanks to our hero, @Tom Kindlon.

vanElzakker is a neuroscientist, not a clinician or an infection specialist, though of course he will have some knowledge of viruses, immune cells etc. He is also co-founder of PolyBio with Amy Proal who is very keen on the persistent virus approach, and she seems to be getting lots of non...

It gets worse and worse.

Is there anything about how the EEfRT is carried out? What I mean is, were the participants seated, feet on floor, at a computer, or able to lie down during the 15 minute exercise and the time while it was being explained and practiced? Was their arm supported in a comfortable position so only...

My understanding is that this paper is the overall summary paper of the study, and there are other papers on specific aspects lined up ready to be published once this one is out. Has anyone seen any more news on this?