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https://www.irishtimes.com/news/health/scientists-discover-promising-off-switch-for-inflammatory-diseases-1.3443334?mode=amp

No they should not. Especially the high quality science of PACE. Keep calm and G.E.T. on :banghead:

The debate continues... Google translated from article in NRC Handelsblad (Dutch newspaper) https://www.nrc.nl/nieuws/2018/03/26/frustratie-over-me-spreekt-uit-advies-gezondheidsraad-a1597158 Frustration about ME speaks from the Dutch Health Council advisory report The Dutch Health Council...

Nice to hear that not everybody is on the paleo / keto / bonebroth hype. 100% vegan here. Also tried gluten free / soy free / sugar free / low fat for about 6 months. Think Dr. Mac Dougall diet but without gluten. I tried this after having an IGG food sensitivity test. Did not make a...

same here.

That's my glass

It wasn't perfect. And we all know there is still a long way to go. The psycho-babblers need to leave the scene 100%. What I am happy about is the very clear message that went out yesterday: ME/CFS is not imaginary, but a real, and very serious chronic illness. And that message has been heard...

thanks, I used it to edit my post.

NOS JOURNAAL, 19-03-2018 - 10:00 Dutch National Television, daily news. English subtitles added.

...recognize that ME / CFS is a serious disease accompanied by substantial functional limitations and consider the choice of a patient to avoid CBT or exercise therapy NOT as 'inappropriate recovery behavior'. CBT and GET are not to be regarded as adequate treatments for ME / CFS. The choice to...

Summary: Conclusions and recommendations Scientific research on ME/CFS is needed to serve patients better. Meanwhile, it is essential that ME/CFS is a diagnosis that is made in practice, that patients’ disease symptoms are taken seriously and treated as well as possible. Their functional...

Dutch Health Council just published their guidelines. now also available: english summary, thanks @Effi

Short radio interview with ME-patiënt Lisa Klaasen just aired on NPO-Radio 1 and that went well. Lisa did a great job explaining the illness, how it goes way beyond fatigue and what we expect from the Health Council today: get rid of CBT/GET. Interview below. (dutch)

No. O2 levels measured by sat-meter did not change during or after 1 hour of O2 intake. Only when in PEM.

Received the Philips Everflow 5L/min. 3 days ago. I have done 3 one hour sessions in the past two days. Can't say I have noticed anything, good or bad. Will continue trial for a month. If it does nothing I will sell it on.

Tomorrow at 20:00 on the "NOS Journaal" (dutch national news): An item on ME/CFS as the Dutch Health Council will publish their long awaited advice/guidelines on ME/CFS tomorrow. Also a radio item on this tomorrow morning between 06:00 and 09:30 on NPO1-radio, I have not yet found the exact...

I ordered a refurbished oxygen concentrator today. (5 liter / min.) Some PWME reported significant benefits. (Not specifically with increasing sp02). Will update after trying it.

Thanks for sharing Gary! Listening right know. For others who cant immediately find it, it starts at exactly 02 hours and 10 minutes. Edit: Just finished. Great Job! Congratulations on and best wishes for your upcoming marriage @Gary Burgess

From family members that have seen it I have gathered that they did not get that. Even my father started asking me some wrong questions about "that woman who seemed to be cured" :banghead:

The radio interview was brilliant. That's why the TV broadcast was so disappointing. And unfortunately the radio interview aired in the middle of the night, between 3 and 4 AM. I'm afraid that it will not have reached a lot of people outside of the ME/CFS community.