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Random thought: The government NEVER move this fast; If they have produced a response to the Work Capability Assessment: Activities and Descriptors Consultation in less than a month, they they were already writing it before the consultation closed, weren't they? And that means they knew exactly...

This. I was mild-moderate until the DWP repeatedly told me I was fit for work - having had to leave my career due to severe health issues, even before I got diagnosed with ME - and I got pushed into part time work. That lasted 13 months before I was physically and mentally destroyed and became...

This is absolutely insane.

Announced yesterday on the DWP page of gov.uk; Back to work boost for disability benefit claimants as ground-breaking employment scheme expanded https://www.gov.uk/government/news/back-to-work-boost-for-disability-benefit-claimants-as-ground-breaking-employment-scheme-expanded "A pilot scheme...

Maybe they are in need of CBT to deal with their false usefulness beliefs...?

From George Monbiot's article, linked in the tweet in this post "Fiona Fox is also the director of the Science Media Centre, the public relations body set up by Baroness Susan Greenfield of the Royal Institution. It is funded, among others, by the pharmaceutical companies Astra Zeneca, Dupont...

"The only thing necessary for evil to triumph in the world is that the good do nothing" I cannot in good conscience stand by and not respond to these consultations, no matter how unlikely we are to be heard. While I can continue to take action, I will. I hope you don't mind @tornandfrayed but...

You can also email your response to: wcaactivitiesanddescriptors.consultation@dwp.gov.uk which is what I am currently working on, at great physical cost, with the long suffering @It's M.E. Linda I attended the online Disability Benefits Consortium meeting yesterday afternoon and the DWP were...

I have had this a couple of times thanks to the addition of Long Covid to my ME. It is truly terrifying as my vision gradual turned into a flickering honeycomb pattern, even when I closed my eyes. It lasted about 20mins each time and has happened when looking at my laptop. I think previous...

This is super helpful, thank you. I have shared it with MEA, AfME and the Disability Benefits Consortium coordinator as well as my local group contacts. Hopefully this will help with numbers of responses.

Thank you :thumbup:

Apologies if this is actually a blindingly obvious question, but I have spent too much time reading various people's thoughts about this whole thing today and my brain has completely given up on me; does the Delivery Plan already have cross party support? Thanks in advance.

if you are anything like me it is more of an uneasy truce from necessity

I am sorry we have given you the idea that hope is gone. I spoke to a friend this morning who said that there is reason to be optimistic, but we still need to keep on keeping on. Making peace with it is a work in progress. It is hard. And an ongoing process. I am finding threads like this one...

For me it is a case of hope for the best but plan for the worst. I have been sick for 15 years. This year marks the 10th anniversary of my ME/CFS diagnosis, and I have had Long Covid for two years - among other things. I have spent 7 years trying to make even the slightest dent in the...

A random hard copy survey turned up in the post today

That's what I thought. Does sod all for the ringing, but you get much better in filling in questionnaires the way we want you to :banghead:

I am very grateful for this thread. It really resonates with me so much. I had the same realisation recently; the cavalry aren't coming. I am probably not going to get better in my life time. It is so brutal. It is hard not to be consumed with frustration that we could have been in a much...

Hard copy received (after being chased on Thursday!)

Never hurts to ask...?