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I'm glad my experience is helpful to you. It's was not at all clear. I am educated to post-graduate level, had the B&W guide and an intelligent carer and we got completely baffled by it to start with, because of all the hoops the they have created around dates and deadlines

I find this extremely worrying..why do they need to check bank accounts? Why do they want to know what I am spending my money on? What right have they got? We are having building work done so I am very concerned about these sort of intrusions, in an already extremely stressful situation.

Glad it was helpful. I did get completely overwhelmed for a month, as the "right date" within the 3 months was complicated by my transfer being over Xmas, and it is a four week assessment period and you get paid a week after that four week period. You also don't actually have three months, as...

I went through it in December/January and didn't have any other contact than via the online journal. I did not have to go to or even speak to the jobcentre. Good thing; our JC doesn't have disabled parking - or any parking, I do tend to go overboard with info I supply. The benefits and work...

Thank you

Very well said @Trish I found your comments incredibly validating..it is hard not wonder if it is me at this point - and I just need to try harder. Or maybe that's just conditioning..:whistle:

"He didn’t doubt the virus had triggered the fatigue but felt he had later become caught in a vicious cycle of illness driven by his fear. Viruses cause fatigue in order to make people rest, which promotes recovery. But, in Garner’s case, his recovery had gone awry because he inadvertently...

Isn't that the definition of narcissism; to believe that reality and the truth are maleable to one's own ends?

This is utter madness. Why on earth are they giving with one hand and taking away with another. I'm sorry that you have had to deal with that @Kitty I need to check if I still qualify for exemption of prescription costs as I have an unnerving feeling I don't any more, which could be expensive...

I have just gone through the Universal Credit managed migration process. I am educated to postgraduate level and have a carer and had the comprehensive Benefits and Work guide. I still found the process unnecessarily confusing with regards to what needed to happen when and how long I had. I...

This is what worries me, a lot. What if they don't like the choices I make? I have heard some appalling stories. :rofl: at least you have kept your sense of humour ;)

Why?! This really freaks me out; why is it up to the DWP what I spend my money on? I am currently going through the UC migration process and in the assessment period between ESA ending and UC starting and panicking at every email that says "check your UC account" after years of issues with the...

To whom @Tilly ? Do you need any assistance?

Yes..I had not braced myself for the fact that anyone who was interested was clearly able to respond. You can almost hear the screeching of metal as certain people are trying to wrench the dialogue back in the direction of GET, childhood trauma and the need for positivity and recovery stories.

The consultation outcome has been published: https://www.gov.uk/government/consultations/improving-the-experiences-of-people-with-mecfs-interim-delivery-plan/outcome/improving-the-experiences-of-people-with-mecfs-consultation-outcome

I thought bruxism was the same as temporomandibular joint disorder, but Google tells that it's not..I have TMJD and grind my teeth very painfully,despite my custom made bite guard. N=3 in pwME I know personally. I think teeth grinding is supposed to be common in ME? But it might be another of...

Yes. This. Very well put @Peter Trewhitt I had been trying to figure out exactly what the problem is, and it is this: propping up the status quo for fear of conflict, when confrontation is exactly what is needed. The current paradigm and power balance have been in place for over 30 years and...

Reading this thread is giving me a lot more very serious concerns. MEA have: social media staff, but Dr Shepherd is on SM 7 days a week and some comments appear to have been hidden set up a clinics project, which has not started by asking the local group In that area what they are are already...

And yet AfME had a public AGM online, recorded it & it is now on YouTube So it's not impossible?

Thanks @Woolie Getting officially diagnosed with PTSD is almost impossible, ironically, but my symptoms have been recognised by multiple medical and mental health professionals on my notes. The DSM 5 criteria are very thorough. Can confirm, it really is that bad, so I do appreciate the point...