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drip, drip, drip,...

Exactly. Even with the most favourable test conditions for the hypothesis/model, it still delivered a null result. It doesn't even work for chronic fatigue only, let alone CFS or ME. Or at least, the way the study was run doesn't allow us to tell if it delivered even for CF only patients.

Decision Algorithm for Assessing Quality and Relevance of CFS or ME Study: 1. Is PEM required by the diagnostic criteria used in the study? If yes, continue reading. If no, stop, discard, and move onto next study.

In a backhanded sort of way that is our 'ace'. We have no choice but to keep fighting until we get what we need.

If PACE is of no consequence, then how can he justify wasting so much money and time and advocacy and legal defence on it? If it is of no consequence, then releasing all the (anonymised) data cannot possibly hurt his reputation. If it is of no consequence, then he and his co-principal...

They have? The less evidence for X, the more hyperbolic must be the sales pitch for it. "Incredibly", my arse. :grumpy:

More a question of whether it qualifies as medicine at all.

Interesting argument, isn't it. To incentivise the poor you have to further impoverish, demean, and terrorise them. But to incentivise the already rich, you have to give them ever more of the pie (via tax cuts, subsidies, grants, etc), praise them to the skies, and mollycoddle them as much as...

They really are descending into madness, aren't they. :grumpy:

Medicare will become insolvent in 2026, U.S. government says And they are going to make damn sure it does.

Thanks to all involved, especially @Emsho. :thumbup:

19th? That advanced?

The most remarkable thing about Prof. Sir Simon Wessely is his successful decades-long portrayal of himself as both the victim and the hero of the whole shitty farce. The truth is that he has profited handsomely from our suffering, while delivering only pain and grief and despair for us in...

:sick:

And ruthlessly and effectively exploited. Not that I need to point that out to my fellow patients. :rolleyes: This is the bigger story. How the PACE/BPS crowd got away with it for so long. They could not have done that on their own. Virtually every institution or formal process of governance...

One of the biggest scandals in the history of modern science-based medicine. i.e. The last 150 years.

The downside of academic freedom. That must sting. Exactly. I also want to know at what point in the therapeutic process does the patient's bodily misperceptions miraculously transform into being reliable enough to be the primary outcome measure? It is beyond farce.

Yep. Just keep quietly but persistently pointing out the methodological issues and poor results with PACE and the BPS approach. If they are getting up your nose, don't bite. Just walk away from the computer/tablet/phone for a while. Nice catch. There is fun to be had collating and...

That is exactly what they did. They place patients in a particularly nasty double-bind, where the patient cannot safely give answers that are both true and acceptable. It is astounding that they have got away with it for so long, and speaks volumes about just how poor can be the oversight of...

Yay for Amy. :) Though there is one detail in the article that needs correcting. Public formal criticism of PACE began no later than when it was first published in early 2011, including via letters to the Lancet (some of which, to the Lancet's credit, they did accept and publish on the formal...