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  1. Rain

    Covid-19 vaccination experiences

    8 days since my first Pfizer vaccine. I will sum up my experience when I feel better. But a quick question. I have been painfully bloated... Is this a side effect others have experienced?
  2. Rain

    Covid-19 vaccines and vaccinations

    My area changed the mRNA vaccine dose interval from 3 to 6 weeks a few weeks back. They have now changed the interval back to 3 weeks for the high risk group (still 6 weeks for low risk). I find this confusing as the high risk individuals who have already had their first dose, will not have...
  3. Rain

    Covid-19 vaccination experiences

    I wonder if spring/summer and time for more active allergies will have any impact on the vaccine allergy reactions? If there will be an increase in the next few months or if it is unrelated to that kind of allergies?
  4. Rain

    Covid-19 vaccination experiences

    Side track, but the Geographical difference in preferences fascinates me. In my area one is not able to choose, and people who get Pfizer seems to act like winning the lottery.
  5. Rain

    Covid-19 vaccination experiences

    I’m thinking the same. I have severe ME that started mild and has gotten permanently worse for every virus my body has picked up. Anything else than a permanent worsening of symptoms will be worth it for me. Also, I can’t compare myself to healthy persons taking the vaccine. Just as I need...
  6. Rain

    News from Scandinavia

    I don’t have the stomach to read the full text. But I assume this was meant to be a hit against a Norwegian Professor? Not any less disgusting... How can he think that disclosing an adult relative’s private story should be required before being able to speak publicly about something one is...
  7. Rain

    News from Scandinavia

    I did a quick Google search. Seems like he did a big Radio Interview in 2020 that several written media quoted. https://www.tennis.com/pro-game/2020/07/robin-soderling-opens-nine-years-later-i-feel-good-again/89539/
  8. Rain

    Reduced endothelial function in ME/CFS - results from open-label cyclophosphamide intervention study Fluge & Mella 2021

    . A patent application from the same research team from a few years back.
  9. Rain

    meditation

    I am meditating lying flat in bed: I remove the pillow and do the Shavasana position that I know from Yoga (usually used for the relaxation practice Yoga Nidra).
  10. Rain

    Off label use of Aripiprazole shows promise as a treatment for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Crosby et al. 2021

    Not able to read the publication at the moment. Does it say what self-report form they have used? Never seen PEM being mentioned as a variable before. Have they made their own? Is that form public?
  11. Rain

    Covid-19 vaccines and vaccinations

    @lunarainbows have you and your carer been offered pneumococcal vaccine? Might be an extra insurance. https://theconversation.com/amp/until-a-coronavirus-vaccine-is-ready-pneumonia-vaccines-may-reduce-deaths-from-covid-19-147829 Pneumovax is often offered to immunocompromised. It has little...
  12. Rain

    Covid-19 vaccines and vaccinations

    @Jonathan Edwards A family member (not ME) was supposed to take the vaccine shortly, but her appointment has now been re-scheduled to May (6 months after last Rituxumax). I understand the concern of immunosuppressant giving lower protection, but would not even a low percentage extra protection...
  13. Rain

    Covid-19 vaccines and vaccinations

    I hope she mention these as a way to stabilize mast cells before/after a vaccine. Not as an alternative to vaccination.
  14. Rain

    Muscle cramps

    I second this. I take different types of magnesium for different symptoms. Trying different brands within a type may also be relevant. I can also feel relief from blood thinning or vasodilation, but that should be discussed with a doc.
  15. Rain

    Whitney Dafoe Updates

    The repeated statement without giving any sign of noticing/acknowledge the information I and others had given, felt a bit quarrelsome at the time. But I am glad the thread developed in a different direction than I felt it was headed at the moment I wrote it :)
  16. Rain

    Whitney Dafoe Updates

    Well, as documented above: LGBT/Human Rights veteran Peter Tatchell brought it up without even being encouraged to do so... I think that settles it.
  17. Rain

    Whitney Dafoe Updates

    Do you truly feel like you can talk about your illness/get as much understanding/support from your surroundlings like a friend with more known/understood illness? Do you feel like you can ask your surroundings to support ME research just as freely as a Cancer patient? MS? Lupus?
  18. Rain

    Whitney Dafoe Updates

    A highly decorated gay’s right activist from UK disagree with you. I guess this is where Whitney got the idea of comparison from...
  19. Rain

    Michael VanElzakker

    Seems like you were right - the immunosuppression skepticism is all about an ongoing virus theory.
  20. Rain

    Breathlessness and air hunger in ME/CFS

    I think of my air hunger as a Lactic acid related symptom. My lungs feels like they did at the end of a sports competition before becoming ill.
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