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Jen, statements like these makes it seem like you take for granted that everyone has the same kind of follow up-possibilities as you had. Would you advice against going trough with the operation, even if medically indicated, unless you live nearby and/or have the means to stay close to the...

I’m ignoring people like GEJ. What hit me hardest was the Newspaper’s choice to illustrate the article with a picture of the patient case from the day before. In an article that is pretty far from what she must have intended to spend her limited energy on...

I noticed a more open approach in the Q&A session with @Andy a few months back, @Dx Revision Watch

I can’t thank Saugstad enough for the important job he has done for ME... Still... at this point, I think it would be smartest to talk about the evidence on “our” side without giving other opinions any focus at all. Like in the Climate change debate, there is no longer two equal sides in this...

I know dr Phair has some theories on Trypyophan being a contributor to the IDO metabolic trap. But what are they referring to here?

Checked the price, and assume this to be way out of any ME-research funding league... Are there any cheaper options that could work?

@lunarainbows I have not been able to read all the replies. Have anyone mentioned PopSocket? Pretty cheap on eBay. I would not have been able to use my phone without one.

@Penelope McMillan have any of you tried the new device from Cerbomed called VITOS? The price is significally lower than NEMOS. (I assume that will change as soon as it is officially considered a Migraine treatment device.)

Get in touch with an Optician that work with specialized filter glasses. Maybe also worth a try to check if you could benefit from prism correction.

Great, really looking forward to this. I feel like adding that the premise of my (and I assume others) questions of course is that we understand he is not allowed to give medical advice, that we need to discuss with our doctor before considering starting anything etc. Still, I really do hope...

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Amino Acids. Can they do any harm?

Mestinon - only relevant if antibodies is found? Or might it have other effects as well?

@Perrier i understood it as PEM is causing poor sleep. Not the other way round.

Wow. That is just sad... Agree, it would indeed be interesting to know why they pulled out.

What was the name of this person?

Wow, Steinkopf deserves a medal. Documenting a full decade of this craziness in one brilliant post!

Apologize for the confusion, I did of course mean available as in offered to patients with ME-diagnosis outside a trial.

@Grigor adding to your list: Moreau also mentioned thymoquinone that can be found in Nigella Sativa/black seed oil (when he talked about brain fog).

@NelliePledge