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Dr Judith Bruchfeld, of the post-covid clinic at Karolinska in Sweden, thinks back to how it all started. Långtidscovid: "Från tanke till öppen mottagning tog det 6 veckor" https://www.karolinska.se/om-oss/centrala-nyheter/2025/03/covid-del-5-langtidscovid/

Postcovid: Marie jobbar heltid igen, men ”viruset lever rövare” https://vision.se/tidningenvision/arkiv/2025/nr2/postcovid-marie-jobbar-heltid-igen-men-viruset-lever-rovare/ (Vision is a trade union, with more than 200 000 members. Members' jobs involve management, developing and administrating...

Paywalled article. Är postcovid en kultursjukdom? https://kvartal.se/artiklar/ar-postcovid-en-kultursjukdom/ According to the submission guidelines, for a text to be published in Kvartal it "should be both well written and deal with a new topic, or an old topic in a new way" and "claims...

(Not ME, but relevant to pwME.) New article by Sara Riggare, expert patient, patient researcher and researcher at Uppsala university in Sweden. Hear my concerns and I will take your recommendations seriously "Sara Riggare highlights the importance of trust and dialogue when making treatment...

No longer behind a paywall :thumbsup: https://www.gp.se/livsstil/jessika-har-levt-fem-ar-i-ett-nedslackt-rum.54f0f553-f24c-4e7a-a5bc-e1193ff2b28c?access=unknown

A transcript would be very appreciated too, for those of us unable to watch/listen.

Yes, sorry. Some context is missing in that example. I'm unable to share more because the other examples/sources are from private Facebook groups.

I'm not sure, but I've recently seen comments on social media alluding to a ME clinic changing some patients' diagnosis to functional somatic disorder when they don't recover. (I don't have more specific info about that at the moment, sorry.) Here's an example...

Thanks, good to know :) I've added a link to a text-version of both the articles now. Thank you, @Peter Trewhitt! :) (Sorry for all the edits, the brainfog is very thick today...)

I've added auto-translations to both the SFAM texts now (see the original post).

"no conflict of interest" :) I never know if it's worth adding a translation of the Swedish texts I'm linking. Not sure if people read them, if it's worth the effort? I've added an auto-translated text of the article now (see the original post).

SFAM has published a reply in their most recent issue, written and signed by Docent Sten Helmfrid, Professor Jonas Bergquist, Professor Emeritus Anders Rosén, Dr Per Julin, Dr Judith Bruchfelt, Dr Lisa Norén who also represents the Swedish Covid Association, a representative for RME (the Swedish...

Yes of course. To clarify, I just meant that we don't know yet, it's too early to draw any conclusions about whether there are different kinds of ME in this regard, and if so what makes the types different from each other, and can your type change over time etc. We just don't know.

I, too, am what you call "a deteriorater". I believe there is a potential danger in "othering" us through different labels etc, not least because of how the ME deniers and the BPSers are weaponizing everything against us. You already often hear things like "ME can't make you that ill, it must be...

Ola Didrik Saugstad and Mette Schøyen talk about biomedical ME research findings. A recent webinar in Norwegian, with Norwegian subtitles (38 minutes). Hva skjer i ME-Forskningen nå? Please support Norges ME-forening Oslo och Akershus fylkeslag if you find the webinar useful.

A wee bit of good news! The Swedish Covid Association announced today that the Parliamentary Ombudsmen (JO) has decided to investigate their complaint against the National Board of Health and Welfare! :thumbsup: JO tar upp vår anmälan mot Socialstyrelsen...

"PLOS has issued a statement on recent US Executive Orders and scientific integrity. We are determined to stand firmly behind our mission, our values and our principles, and against any attempt at censorship or undermining of the core principles of scientific inquiry." (bsky) PLOS statement on...

Paywalled Hård kritik mot granskade virusläkaren: ”Vårdslös och bristfällig” https://www.etc.se/inrikes/haard-kritik-mot-viruslaekaren-vaardsloes-och-bristfaellig

Federal Register hold makes ‘end run’ around court pause on NIH funding freeze https://www.thetransmitter.org/funding/federal-register-hold-makes-end-run-around-court-pause-on-nih-funding-freeze/ "A large portion of grants awarded by the U.S. National Institutes of Health (NIH) cannot be funded...