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  1. Bluesky

    Action for ME terminates, by mutual agreement with the University of Bristol, contract to fund Crawley study

    i am not sure where to post this but this was a thread here i can't find. cope posted this on twitter Journals need clear definitions of conflicts of interest and processes for handling conflicts of interest, whether identified before or after publication. For advice and guidance use our...
  2. Bluesky

    Action for ME terminates, by mutual agreement with the University of Bristol, contract to fund Crawley study

    i believe that afme pull stunts and between the lines the corporate sponsor may well have seen the research critique re children with me lp. gotton onto afme andn made sure their money was not going to crawley. couple of things here re crawley. 1 i wathced that ted talk of hers all the way...
  3. Bluesky

    B12/Folic Acid and D3/K2 Supplementation

    from what i am learning there is a link in all the tests and treatment with all things being balanced out. so yes there are some with genetic defaults so that they are not able to translate and absorb the folic and or b12. it quite complicated the relationship between the folic acid which can...
  4. Bluesky

    B12/Folic Acid and D3/K2 Supplementation

    there is a really good twitter account @b12unme which has a link to the facebook page where you can find support and information in docuents research etc. the site b12deficiency.info is very useful and full of links for uk to nice guidelines. testing that needs to be done. blood tests are...
  5. Bluesky

    inhalers, nebulizers, prednisone, montelukast, tricky stuff, related stuff

    i have lung issues too. have a damp problem and some mold issues with asthma too. no exert but just my experience was the inhailed blue used to make me shake, i think the long term use of this is not so good so i only use in case of emergency. the most well tolerated i found was the...
  6. Bluesky

    James Coyne - A sudden reversal of fortune for the biopsychosocial model of illness

    i guess as in any work place you meet the same people and don't always agree with them, but in other areas over the years they will have known each other. james was certainly approached by sw to stop and side with him. but james told him no. james takes the high road. no matter what the...
  7. Bluesky

    James Coyne - A sudden reversal of fortune for the biopsychosocial model of illness

    i like his work too. at school some were called spirited young ladies. i dont know how that translates to men but he sure has a fire in his belly to push for change for us. sometimes unusual results demand unusual methods. think james comes under the heading of the above. we have been so...
  8. Bluesky

    Which autoantibodies would you test for?

    i am not sure of the answers. i do know that you seem to have dx factors of b12 deficiency. that in itself can cause a whole host of symptoms. its very often missed and dx as m.e. also there does seem to be benefit from many pwme from taking b12 injections. this is covered on dr myhills...
  9. Bluesky

    News from Dysautonomia International

    well said. we must always have those to ill to be online at all or not at all in our minds.
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