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What patients need is not detailed planning and micro-management. They need the flexibility to adjust their activity pattern as required. Which is pretty much the complete opposite of planning and schedules, etc. Indeed. I had forgotten about that rhetorical sleight of hand from PACE. I agree...

We do not know the cause of ME/CFS, but our fatigue service can address the factors that cause fatigue symptoms to persist and reduce their impact on everyday life. A slippery game with words there. Sliding casually from we don't know the cause of ME/CFS, into we know the factors perpetuating...

Yep.

Another fine piece of work condensing the critical facts into a short readable and punchy form, @ME/CFS Skeptic. Thank you. :thumbup:

Does belief in functional brain aberration predict having functional brain aberration?

:thumbup:

There is crap. And then there is something like this, which makes the standard crap look and smell good. Maybe that is its purpose.

Naughty @Trish and her selective citing. She 'forgot' these critical papers: . . . . . . . and, of course, the classic seminal study from Wonky, Shyster, and Nothingtoseehere: .

It's psych! It's not psych! Too late, Sir Simon Says. This is the drearily predictable fruits of your decades of reckless unrestrained psychopathophilia. From day one you were spreading the psych gospel way too hard, way too early, way ahead of any robust evidence, installing this crap in every...

The Goldilocks Theory of Managing ME. Requiring, of course, the help of an expensive expert to guide you down the Healthy Path of Moderation. If I could get these 'experts' to understand just one thing it would not be the direct experience of the disease itself, it would be just how...

Me too. I think the forum should consider formally requesting AfME that the S4ME reference is either withdrawn, or rewritten to accurately reflect the forum's position on that booklet.

It is crystal clear that nothing is going to change while those responsible for creating the catastrophe are allowed to remain in charge. Which is apparently what is going to happen. It is just tweaking the marketing, and not even very much. This shit could have been written 2 decades ago, and...

'for those who choose to increase their activity' They are perpetuating the dishonest, cruel, and gutless psycho-drama morality-play framing. They know what they are doing.

The included studies were very different and therefore we judged that it was not meaningful to make comparisons of reported efficacy results, or to assess the reliability of those results WTF? Especially the reliability issue. That is the whole damn problem: not using sufficiently robust...

Prevalence of orthorexia varies across countries and populations, ranging from 6.9% in the Italian population to 88.7% in Brazil, 88.7% That number is very difficult to take seriously. o_O

The Anomalies paper was published less than a year ago and it uses GET, and all three PACE PIs are authors on that paper. Or even deconditioned at all. There is simply no evidence that it is a primary feature of ME/CFS. Not on its own, certainly. But it has long been a core assumption in their...

Only 15% (11/75) reported that they had believed that their condition was related to physical deconditioning at baseline whereas 81% (61/75) believed this after treatment I have real trouble believing the researchers actually believe this is a practical meaningful result. Frankly, all it...

With M.E., the body’s systems are thought to have become poorly regulated and hypersensitive. The body is in a constant state of 'high alert', almost as if a switch has been thrown and the whole system is in a state of emergency. This is thought to be why the smallest of stressors such as noise...

Until they can't.