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Open Letters and Replies

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  1. Science For ME
    Locked Sticky

    S4ME: 2023 Open Letter, complaints, petition updates regarding Cochrane and the CFS Exercise Therapy Review

    Science For ME, Aug 28, 2023 ... 2 3
    Replies:
    57
    Views:
    23,535
    Science For ME
    Apr 29, 2025
  2. Science For ME
    Locked Sticky

    Open letters to the UK ME Association trustees about a research project developing PROMs, led by Sarah Tyson

    Science For ME, Apr 2, 2024
    Replies:
    4
    Views:
    4,116
    Trish
    Apr 6, 2024
  3. Trish

    Open letter to Action for ME with concerns about their promotion of a problematic Care and Support Plan Template

    Trish, Aug 23, 2024 ... 4 5 6
    Replies:
    116
    Views:
    8,707
    Ash
    Jan 17, 2025
  4. Trish

    Open personal letter to the trustees of the UK ME Association, December 2024

    Trish, Dec 29, 2024 ... 2
    Replies:
    24
    Views:
    2,429
    Dx Revision Watch
    Jan 4, 2025
  5. Andy

    UK: Open Letter: Urgent Call for the Creation of an NHS Protocol for Severe Myalgic Encephalomyelitis (M.E.)

    Andy, Feb 14, 2024
    Replies:
    18
    Views:
    1,865
    Jonathan Edwards
    Apr 17, 2024
  6. Andy

    S4ME: Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire

    Andy, Jan 23, 2018 ... 7 8 9
    Replies:
    165
    Views:
    31,293
    Lucibee
    Aug 9, 2023
  7. Lapis108

    Open Letter to the Society of Occupational Medicine

    Lapis108, Jun 27, 2023
    Replies:
    1
    Views:
    1,232
    Trish
    Jul 3, 2023
  8. Science For ME

    S4ME Letter to Nice Concerning Chris Burton

    Science For ME, Jan 21, 2019
    Replies:
    11
    Views:
    4,598
    Trish
    Dec 20, 2022
  9. Graham

    Bristol - New Network - Prof Munafo

    Graham, Sep 18, 2018 ... 5 6 7
    Replies:
    135
    Views:
    20,736
    MSEsperanza
    Mar 11, 2022
  10. Trish

    A personal letter to the NIH team researching ME/CFS about their PEM study, 2020

    Trish, Oct 6, 2020 ... 2 3
    Replies:
    42
    Views:
    7,747
    shak8
    Dec 3, 2020
  11. Science For ME

    S4ME letter to Cochrane re: proposed new Exercise for Chronic Fatigue Syndrome review and patient involvement

    Science For ME, Nov 14, 2019 ... 2
    Replies:
    23
    Views:
    4,775
    Andy
    Jun 1, 2020
  12. Trish

    Open Letter to the Chief Executive of Action for ME about the AfME web page on Graded Exercise Therapy

    Trish, Oct 20, 2019 ... 2
    Replies:
    24
    Views:
    5,217
    rogerblack
    Dec 1, 2019
  13. Trish

    Open letter to Dr Peter Fisher, Liverpool University, about a research survey on emotional distress and CFS. 2019

    Trish, Nov 7, 2019 ... 2
    Replies:
    36
    Views:
    5,791
    Snow Leopard
    Nov 12, 2019
  14. Trish

    Open letter to the Trustees and Staff of Action for ME about the 'Toolkit for professionals'

    Trish, Jan 12, 2019 ... 9 10 11
    Replies:
    209
    Views:
    34,183
    PhysiosforME
    Oct 24, 2019
  15. MyalgicE

    ME Australia’s submission to the National Health and Medical Research Council on their draft report

    MyalgicE, Mar 25, 2019
    Replies:
    7
    Views:
    2,075
    BruceInOz
    Mar 26, 2019
  16. Science For ME

    S4ME letter to NICE and Replies, re: "three members of the ME/CFS Guideline Committee have a conflict of interest"

    Science For ME, Nov 30, 2018 ... 2
    Replies:
    27
    Views:
    5,625
    ME/CFS Skeptic
    Mar 24, 2019
  17. brf

    Open Letter Video to Prime Minister Trudeau: May 2018

    brf, May 7, 2018
    Replies:
    10
    Views:
    2,884
    DokaGirl
    Dec 15, 2018
  18. Andy

    IiME letter to Mark Baker (NICE) re: CBT & GET as recommended treatments

    Andy, Jan 16, 2018 ... 16 17 18
    Replies:
    340
    Views:
    44,704
    Trish
    Jul 30, 2018
  19. Kalliope

    MEAction: The NIH responds to #MEAction, next steps

    Kalliope, Jul 19, 2018 ... 2
    Replies:
    21
    Views:
    4,546
    Dolphin
    Jul 21, 2018
  20. Andy

    Open Letter: 74 International experts urge Dutch Minister of Health to make substantial long term investment in biomedical research

    Andy, Jul 17, 2018
    Replies:
    3
    Views:
    2,355
    Esther12
    Jul 19, 2018
  21. Jonathan Edwards

    Submission to the Scottish Parliament by Jonathan Edwards

    Jonathan Edwards, Jul 7, 2018 ... 4 5 6
    Replies:
    104
    Views:
    18,394
    Emsho
    Jul 19, 2018
  22. Webdog

    My letter to the CDC concerning Kaiser Permanente still recommending GET

    Webdog, Jan 24, 2018 ... 4 5 6
    Replies:
    110
    Views:
    20,833
    Allele
    Apr 30, 2018
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