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Reinventing the pace wheel walking but apparently yet again no step counting no long term follow up beyond the 12 week programme apparently The remote format means participants would find it a lot easier to go under the radar if not fully adhering to the program.

I wouldn’t want to use my charity contribution to support their conference they have had some dubious participants in previous conferences

Does the translation using the term “rig” to describe how to design research reflect the original Norwegian in the quote of Helland. In English usage one meaning of to rig is to falsify eg to rig a vote.

Glacial, Byzantine

I’m glad you managed to get the sleep study @MEMarge. I asked about sleep study referral when I was still working part time - “that’s only for sleep apnea” apparently :whistle:

Good it’s being covered on the bbc website now

Thread here https://www.s4me.info/threads/a-safe-and-effective-micro%E2%80%91choice-based-rehabilitation-for-patients-with-long-covid-results-from-a-quasi%E2%80%91experimental-study-2023-frisk-et-al.33687/#post-478729

Yeah gradual onset definitely doesn’t mean non infectious just that any infections didn’t cause a level of acute illness and seemed unexceptional so hard or impossible to pinpoint in the same way as a severe infection.

The Schweizerische Gesellschaft fur ME said they would cover the petition in their December newsletter

Maybe there’s a good scientific reason for not looking into what the long term consequences from viruses generally can be before carrying out such research? And particularly if you’re looking at a specific type of virus, looking into its history eg the Flu pandemic. As a non scientist it is...

My one’s the bestest at doing measuring cos I say so ner ner ner :whistle:

Why is a private service being advertised on NHS website. It’s different if they contract to a private supplier but the service is through the NHS.

“Other” Ugh

Strengths Weaknesses Opportunities Threats (risks)

Presumably this is mainly at the suggestion/request of the family, or where a specialist such as Dr Weir has been advising. what gets put on death certificates can change over time for example pneumonia used to be reported as the cause of death for people with dementia, because dementia...

No Brits on the author list for this one…..

https://www.s4me.info/threads/‘the-index-of-me-symptoms-times-’-developing-a-clinical-assessment-toolkit-for-me-cfs.36345/#post-506047 This is the project

Does it say anywhere that a possible MS diagnosis has been ruled out for the ME/CFS participants ?

I spotted there are small versions 50l

I’m finding the apps judgment on my state as shown in the scores and accompanying comments pretty unhelpful eg for 48 hours I’ve had symptoms at my high end and hrv at the lowest point of my range it scored me as 4 you are at a stable baseline….. which is second highest level I think part of...