Search results

That's all??

I also found that aspect was confusing. Having multiple mini-PEMs a week does definitely sound more like people did something and got fatigued--perhaps from deconditioning--than that they actually suffer from PEM.

interesting that Crawley isn't on there.

And KCL has a history of inflating pathetic findings in press material.

he just wrote about long covid clinics for Popular Science magazine. We've had some contact. He's having a hard time with his long covid.

I haven't seen references to this. do you have any more details?

Sure, patients' voices are always important! I think it's key to make sure whatever statements they're making are accurate.

on the other hand, she presents this as the counter-knowledge--in other words, the article takes the view that the biomedical perspective on LC in particular is "winning" and is the dominant narrative. This is presented as the counter-narrative--not as the narrative that has been dominant for...

She relies on one long example, and then Sharpe, Hallett, Stone and Carson. And that's it. The rest is just conjecture and lots of psychosocial stuff thrown around. No patients with ME or LC. No interviews with scientists researching ME or LC. Or clinicians. It's really just speculation...

Maybe they're identical cousins, like Patty and Cathy Lane on the Patty Duke Show in the 1960s? (For those who are not older Americans like me, Patty's hair was flipped out at the bottom to show she was cool, and Cathy's hair was flipped in to show she was sophisticated.)

i don't understand the Item 1/Item 2 thing. If they have clinical diagnoses of ME/CFS, should meet the three Item 2 criteria. It doesn't make a lot of sense.

Probably not, but in any event what would I say in reply? I don't know that i have anything else to add to the discussion.

Thanks. So Archives says it was their fault. But of course Esther had an obligation to pursue it if it fell through the cracks, but she didn't. So Archives was incompetent and Esther failed to do what she was asked to do.

this is one of the seven that did not have corrections made after Crawley was ordered to do so. Archives of Disease in childhoood, which also published the Lightning Process study, had made corrections in one of the papers but not in two. I was pressing the journal to confirm whether or not...

He graduated quite a few years ago. I went to Harvard many years ago and things like this change. I wouldn't focus on this.

Yes, I haven't read it yet. But at least he got it right that I'm an academic. Of course, he never contacted me.

I don't think this distinction is really significant in terms of the ethical/disclosure issues involved. It's one thing for the ME Association to hold a fund-raiser on its own behalf in connection with a news program. It's another thing if he was involved in the fund-raising and personally...

Since it happened, I wouldn't refer to it as an accusation, as if it's an unproven charge. If he held a fund-raiser for research and advocacy, this should have been disclosed. I can't fault those who pointed it out. The journalist and news organization left themselves wide open to this sort of...

Ha! That would be quite a shock!

Oy, lots of stickers! Are you in US or...?