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    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Oct 2022

    It seemed there were a couple times when couple donations of $2000 or $3000 occurred more or less at the same time. The large donations always kind of shock me. But of course it wouldn't work without all the smaller donations of whatever size.
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    Long COVID and Post-infective Fatigue Syndrome: A Review - Wyller, Moss-Morris, Crawley, Knoop, Lloyd et al, 2022

    Hm, I don't remember seeing that at the time. In any event, the results paper didn't find any psychological parameters, but apparently Katz doesn't believe their own findings, I guess. Or doesn't find them convincing enough to not put his name on COFFI's paper.
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    Long COVID and Post-infective Fatigue Syndrome: A Review - Wyller, Moss-Morris, Crawley, Knoop, Lloyd et al, 2022

    I didn't see that article. Do you remember where it was or have a link for it? I'd be curious to read it. Katz is at Northwestern and it was a study of Northwestern students. Lenny is at DePaul University. Both are in Chicago. Katz has generally held the views expressed by COFFI, as far as I...
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    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Oct 2022

    I'm aware of 2 $5000 donations, which stunned me. Was there a third one of those and also a $4000 one that I'm not remembering? I haven't checked back. Maybe I'm losing my memory??
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    Long COVID and Post-infective Fatigue Syndrome: A Review - Wyller, Moss-Morris, Crawley, Knoop, Lloyd et al, 2022

    COFFI was established by all the usual suspects several years ago to promote their bogus ideas.
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    Holistic or harmful? Examining socio-structural factors in biopsychosocial model of chronic illness,‘MUS’& disability, 2022, Hunt

    They do this anyone. I haven't read the paper so not sure of the status of the definition of "neo-liberal." But well-reasoned critiques of social structures that impose disproportionate burdens on the unwell and disadvantaged are important, no matter how others react to them. What does NOT...
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    Norway: Article about ME seminar with security

    When Reuters "reporter" Kate Kelland, in her role as a flack for the SMC, was interviewing me for her screed, she asked about Paul's tweet that he wished for Professor Sharpe's "professional demise." I said I completely disagreed that that was "harassment" or "threatening" in any way. It clearly...
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    Norway: Article about ME seminar with security

    this was Chalder, not Crawley. I have also confused the two at times.
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    Key Features of a Multi-Disciplinary Hospital-Based Rehabilitation Program for Children and Adolescents with Moderate to Severe ME/CFS 2022, Hiremath

    https://www.virology.ws/2022/10/24/trial-by-error-new-study-promotes-bespoke-hospital-rehab-program-for-kids-with-me-cfs/
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    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Oct 2022

    Thanks for figuring out a fix! I get very frustrated too. Sometimes I hear from people who want to send me funds directly through PayPal and I explain I simply can't take money personally. It opens me up to all sorts of criticisms and charges. However, I'm not completely opposed to someone...
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    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Oct 2022

    I'm not really sure. Each time I think it's behind, and then it works out. There will be a burst the last week, I expect. I will continue for six months (Jan-June next year) regardless of the outcome, since those who are funding me are funding me for that period and I will certainly honor that...
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    Open Interpersonal relationships, stress and symptoms in Chronic Fatigue Syndrome (CFS/ME)

    why is this referring to CFS/ME and CFS throughout? Seems a good sign that they are not up on current thinking.
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    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    About the first point--I didn't take that to mean it was part of Garner's tweet but rather @FMM1's interpretation of the implied message--in other words, it was commentary. It wasn't intended to be read, I don't think, as being what he said literally. However, I agree that could have been made...
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