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Thanks all, I am sorry about the mail and e-mails. There just doesn't seem to be an easy way to stop it. I realize of course that these mailings and so on are a waste.

yes, this is a very perplexing study.

sure, please do. Is there a specific office or dept and phone number mentioned, or something identifying who is sending them? I think the e-mail ones have mostly stopped, but I think the letters go from a difference department.

How often do these come?

Well, there are two things here. During the two month of crowdfunding, I send out "updates" to those who donated in previous campaigns. So I understand that you'd get multiple e-mail reminders in April and October. But at one point the system was also sending out multiple e-mails in between...

I agree. These are valid considerations as to whether employment is the most reliable objective outcome. It might not be for a variety of reasons. But in this case of course the employment outcomes are the same across different time periods and study designs. And the poor outcomes for employment...

So he's a chiropractor but he is referred to as a physician in the appeal for the study. In Canada, are chiropractors called physicians?

I get this of course. But I ask because I'm really perplexed--it just seems like such a stupid thing in this context for this illness by people who really seem to know nothing about it, or about core outcomes, or about anything, and have no record of publishing on it except to complain about...

How often is this happening? I have asked for my donors to be removed from the general solicitation lists because almost all have no attachment or connection to Berkeley. You actually get paper letters??

Thanks! Of course I only want anyone to donate if they feel in a position to do that. I understand times are very difficult.

Can someone explain what a "core outcome set" would look like? Are they trying to decide which metrics are most important to measure? Would it be like, thru this process we've found that the best measures of this illness are: the fatigue scale, and employment status? I mean, what is the end...

oh no! Not my intent at all!!!

Thanks, Trish--Mark had already done the analysis of the other studies, so that was the real heavy lifting. I thought it was good idea to highlight the point and pull all the data together, and point out this was part of the plan from the start of the CBT/GET "project." it's always irritated me...

thanks, Andy. yes, the financial situation makes it really hard. so we'll see. as always, I dislike having to do this.

more or less, yes. How do you "extinguish" the normal response when you know you're going to undergo an unpleasant experience? It's a ridiculous statement. There is zero evidence that "extinguishing fear conditioning," if it were even possible, would have any effect on anything.

Has the paper changed at all from the earlier version?

Andrew Lloyd is Wessely with much better hair.

I'm not aware of him making such a blanket statement in the interview.