Search results

I'm so sorry you had such a miserable time with it. That's a fantastic name. Nearly as good as Dopamax for Topomax, (because it slows down your thinking, and word-retrieval issues - epilepsy drug I take for migraines and pain). I take it anyway, because the pros outweigh the cons. The other...

@adreno some of those alternatives don't look so bad to me. People look at these things from the viewpoint of a non-Majorly Depressed person, and/or with pre-conceived, One Flew Over The Cukoos Nest notions. Research has shown that half an hour of walking daily is MORE effective than pills. If...

@Pibee I keep reading that Lyme tests can be unreliable, so I'd guess your Lyme isn't all killed off, and you should still be on antibiotics, going by your symptoms! Incredibly aggravating to back slide after feeling so good. Have you read up about that issue? You sound extremely well...

@Jonathan Edwards Thank you for commenting. Oh dear, misinformation and confusion. Will need a pot of tea, a nap and to reread 10 times. :ill:

@Bill Ahhh, Someone important said, Good sleep is the foundation of good health. And how marvellous you're feeling the benefits! Definitely fair game to comment on something I've put out there - and I really appreciate your input. I have my husband's sleep study, and he somehow slept for 6...

@Pibee that's absolutely fascinating about your sleep normalising while on antibiotics. I've read about that happening to someone on the "(DSPS) Delayed-Sleep-Phase-Syndrome" Facebook group I'm a member of for my daughter, who's afflicted. Most people on that group seem to think theirs is...

Thanks @Arnie Pye In my case, I was diagnosed on the basis of a high level of TPO antibodies 14 years ago. Apparently, it's OK to have a very low number of TPO anti bodies, it's not all or nothing. I've read that this doesn't warrant retesting regularly or keeping an eye on. I just read this...

@Trish Here's a simple explanation of the info I found that fits my frustrating AWAKE sleep problem. Fibromyalgia and ME have many features in common, sleep problems are one of them. Research (I'll locate if you want, got it somewhere) has shown that people with Fibromyalgia often have...

@Trish My sleep is like yours - every couple of hours, I'm AWAKE! Wide AWAKE! Why the hell am I AWAKE again?! It's like a newborn waking up and crying every couple of hours at the end of their sleep cycle. They rise too close to consciousness, and startle awake. Babies learn not to wake...

Wow Bill! Please God by me! :jawdrop: A decent night's sleep! To wake up feeling refreshed! Ohhhhh... I wish I snored, so I could reap the benefits of a sexy Darth Vader mask, but alas, I just sleep next to a wretched snorer... Might be half my problem. I can only imagine how incredible it...

@MsUnderstood Great food for thought! A low histamine diet is the only one I haven't tried! I bet it feels empowering to find something that works so well for you both. I'm inspired. I stopped eating gluten a year ago, and my dodgy digestion improved dramatically. But I did so to improve my...

Hi @Maria1, I've read that post menopausal women do far better using bio identical progesterone than traditional estrogen HRT. Particularly with migraines! Most women who have migraines get a respite during pregnancy like you did due to the high levels of progesterone at that time! If you...

@Jonathan Edwards @Invisible Woman @Maria1 @Jan @MsUnderstood @Bill @Daisybell We started discussing this on my Introduce Yourself thread, and it's time I tried to be sensible and get a bit sciencey, in my limited way. So, several of us have similar stories of migraines, thyroid problems, and...

Thank you for saying that, Inara. It means a lot to me. We both were motivated to speak by our very hard personal experiences. Let's try to be accurate and calm. I'm bad at calm. :speechless: 40-50% is the range I found. I blurred it for peace. ;)

Oh my God, @Inara, that is all utterly horrendous. I am so sorry for all that you've been through, there in Germany. It's inhumane. From my experience, and my friends', and online support groups here, it really doesn't seem that there is an agenda here among the psychiatric profession. I...

@Skippa I apologise for any inflammatory remarks that overstepped the line. The views of some other members on this thread are clearly highly charged against CBT because they live in the UK where it has been hijacked disgracefully by the NHS as a weapon of coercion against ME sufferers. I do...

Coming in here as a layperson, when you are all clearly professionals in the field. You are enormously damming of CBT, and antidepressants, and I'm SHOCKED. Have any of you suffered from Major Depression, suicidal feelings, suicide attempts, or anxiety? I did, from age 14 to 32. 18...

Absolutely, @Adrian. If they can't identify a pathogen as the causative agent, then they need to "blame" someone. It's like a witch hunt. Who does it help? Who does it serve? Are they going to screen people and only let good enough people breed? Can they protect children from bereavement...

Fantastic! :heart_eyes:

"... childhood adversity is far more likely to be associated with major depressive disorder than in the causation of ME/CFS.” Give the geniuses the Nobel Prize. :banghead: