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Stumbled on this and thought of your question, @Hutan . There seem to be a bunch of studies on COVID-19 and sperm.

Yeah, I agree. I think that's where these two components of the proposed measure would help @Kitty 's idea of "at least two" domains having to increase Collin & Crawley's idea of distinguishing between "because of ME/CFS" and "for other reasons" (tweaked by me) I think when we have no idea...

Thanks to moderators for creating the thread. I know there was a lot happening the day I requested it. Yeah, @Kitty had suggested this as an adjunct to a wearable: I had asked that Kitty’s post be copied over to the new thread so that that context would be there, but it didn’t make it. So...

Can't muster any enthusiasm for this. Am surprised that Young thinks we need "wakefulness-promotion". When I was mild, I was trialled on two SNRIs (for ME/CFS, I did not have depression) and they felt like the opposite of what I needed. One made me insomniac, restless and constipated - very...

There's a study by Rowe et al. 2016 where they compared true neuromuscular strain and sham strain, both delivered by research staff, in people with Fukuda CFS and healthy controls https://pmc.ncbi.nlm.nih.gov/articles/PMC4948885/

My understanding is that the young POTS group do well over time, and she may well have benefitted from some of the many interventions described. But I'd be a bit concerned that in the latter sessions she's developing a number of new/worsening issues: allergies/MCAS, visual motion sensitivity...

I thought this was a nice illustration of how one centre can be different to others. In the Trial Management Group minutes from the PACE trial, a number of issues are mentioned regarding King's: So patients being referred from King's for the trial wanted CBT, were less disabled and fewer had...

Oh look what Graham (RIP) had to say in a comment under Wessely's blog:

Here we go: https://www.nationalelfservice.net/other-health-conditions/chronic-fatigue-syndrome/the-PACE-Trial-for-chronic-fatigue-syndrome-choppy-seas-but-a-prosperous-voyage/ So that's where Wessely said it, and Geraghty mentioned the metaphor, but I can't remember who pointed out that you...

This figure is from Bart Stouten's 2017 contribution to the Journal of Health Psychology's special issue on the PACE trial which you can read here: https://journals.sagepub.com/doi/10.1177/1359105317707531 It's so relevant to the Wechsler discussion that I think it deserves a mention here.

I was looking for that quote today! I thought it was Geraghty in the Journal of Health Psychology but I can't find it so maybe it was someone else...

Must have been such a relief when it finally got sorted.

Well yes, that strategy was necessary to achieve the main aim of the trial: I can't quite believe they wrote that in their paper, but they did.

Really helpful post, @Snow Leopard , thank you. I'm on tippy-toes trying to understand, so I hope you might be able to help clarify a couple of things. I'm looking at what you have said here: and what Amann 2012 said here https://pmc.ncbi.nlm.nih.gov/articles/PMC3351566 and trying to...

:hug: @Sasha , @Utsikt , @V.R.T. My other profound thought was "Mm, pretty colours in the figures."

That must have been horrible. Hope you got it sorted. The table would certainly be helpful if all you know is that your haemoglobin is low, and your doctor isn't following up. TIBC doesn't often appear on my blood tests, but when it does, I'm in the normal range, pretty much in the middle...

:emoji_fingers_crossed:

Flattered to be included on that list but even if my brain weren't mired in sludge, my professional opinion would amount to "Oooh, I hope someone can explain this to me some day in a journal club." I suggest emailing Zhang and Hanson and seeing if one of them might be open to coming on here...

Just to note that I had the iron infusion, and they took bloods just before. In the 5-6 weeks since the last blood tests, haemoglobin had dropped out of the normal range (from the middle of the range). I had side effects - they started 2-3 days after the infusion and lasted 2 days (this is...

Split thread :trophy@ There's actually a lot to be said for a modified version of what Collin & Crawley 2017 did - see tables 3 and 6 in this paper: https://pmc.ncbi.nlm.nih.gov/articles/PMC5513420/ [This may merit a different thread if people think it's worth discussing.] So something like...