I'm tortoising my way through your paper - congrats to all authors on having it accepted for publication.
Building on @Sean ’s comment on @Carolyn Wilshire ’s comment about when the decision to diverge from the original protocol definition of improvement was made -
Just stumbled on my copy...
I darn near stood up and clapped at this point in your fabulous rant, @JemPD. Thankfully my fear avoidance kicked in just in time.
I'll add: We even know that when they say "Persistent Physical Symptoms", they mean "Psychosomatic"! Yep, we cracked that nut. Despite being unable to manage our...
Chronic Disabling Fatigue was defined differently depending on what age the child was. I've separated this into chunks for easier reading, but the remainder of this post is a direct quote from the paper being discussed in this thread:
"Children were classified as having CDF (of >6 months’...
So reduced nighttime sleep duration in the preceding years predicted development of chronic disabling fatigue, but Crawley and colleagues recommend that once these kids have chronic disabling fatigue, their sleep should be reduced in order for them to recover their health. Seems unlikely, no...
Yes, but maybe worse because the label of Persistent Physical Symptoms is used to humour patients/mislead them that they are being taken seriously, and not cue them into the fact that they are being shunted to psych. I think the result will be a lot of angry people with persistent ME. Not being...
A December tweet by Dr Vogt read “I find that arrogance and ignorance is a common, unbeatable and extremely annoying combination. You´re too arrogant to see you know nothing, and too dumb to see your own arrogance.” Indeed, Dr Vogt. Indeed.
I hope that parents of children with ME will...
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