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Clever and careful study. Can't wait to read this one properly on paper.

I wanted to understand what the wages mentioned in the paper equated to in other currencies. I used xe.com and I rounded to the nearest 500 to make things easier to follow. Clerical errors are possible - just let me know and I'll fix. Here you go: 500,000 Norwegian Kroner =42,500 Euros...

A little compare-and-contrast with the EEfRT in the NIH study by Walitt et al: Unlike Walitt et al, Scholing et al calibrated: Ability did not differ between groups in the calibration phase (not assessed by Walitt et al): Ability did not differ between groups in the execution phase either...

As others have said, talk to the professionals as there are many reasons for unintended weight loss, feelings of fullness etc. I have a similar stature to you – I’m always borderline underweight or underweight. I recently noticed I had lost 5-6kg despite eating the exact same and no change in...

Would functional MRI brain before and after alcohol in pwME and controls show anything useful?

Gotcha. Indeed. Can you explain a bit more the nature of the change in neurotransmitter function in the hypothalamus of pwME you think could be happening? Is something being released less or more or? Whatever's going on, it seems unlikely that Graded Alcohol Therapy or changing our...

Where Parkinson's involves degeneration of nerve cells in the basal ganglia and the substantia nigra, and ME/CFS would involve degeneration of nerve cells in the hypothalamus (+/- other locations)?

I think there's a relationship for me. The only other time I've had the sudden severe drowsy fatigue that I experienced with higher percentage alcohol is when I was trying to put on weight, and introduced a smoothie between breakfast and lunch. Just as with alcohol, it felt like someone had...

When my ME/CFS was mild, I was still able to drink a little wine. But twice I had spirits - one glass of Pimms (no other alcohol before or after), and on the other occasion a few sips of a cocktail to be polite (again, no other alcohol before or after) - and they had a sedating effect. After...

Re rheumatology: my experience of doctors from a wide range of specialties is that rheumatologists were the worst/most dangerous. I have seen three rheumatologists. The reason I say dangerous is that all three jumped to exercise as the solution, even the one who was asked to see me because of...

Has anyone figured out something that helps at the dentist? I have to go soon, and think I shouldn't wear foam earplugs and Bose over-ears as I'll amplify the noise of the instruments in my head. Is it just a suck-it-up situation?

This is beautiful, thank you both so much. Simon and the rest of us didn't have a choice. You had a choice, Chris, and that you chose not just to stick by Simon as a friend, but to try to help get him and others out of here, despite all that it costs you, is remarkable. Thank you. Because...

That all sounds horrible to deal with. I think the confusion is that you and I are using the term OI differently. I use OI as an umbrella/parent term, with POTS, postural hypotension, neurally-mediated hypotension etc as types of OI. My difficulty is different from yours on testing - takes...

Your pattern could still relate to OI if you're doing a lot of orthostatically challenging things during the day. I'm curious, do you have prominent OI? As in, do you get dizzy spells/times when you nearly faint or actually faint? No need to answer if you don't want to. There are certainly...

I am so much better cognitively in the evening, though it took me a long time to figure that out because I was still trying to do orthostatically challenging things like shower early in the day and thus scuppering myself indefinitely. A frequent one for me is that I cannot talk all day but can...

The sentence doesn't mean what Miller wants it to mean. He has written that the description was attributed to mass hysteria, not that ME was attributed to mass hysteria. His sentence means that mass hysteria wrote the original description of ME. He might think that too, but from the context...

Thank you for spilling! When you say "Maybe viral malaise provides one side of a vicious cycle", does that relate to "stay-at-home" in this previous post of yours? And then would you expect this group to have had a little gap between infection and ME/CFS?

It's as if you don't want to influence our responses. Don't you know how ME/CFS research works?!

Yep, I know what you mean. People with no gap are, by definition, going to be the ones filling out the poll most because they're the ones who are most confident that their ME/CFS was triggered by an infection or vaccination. People who got ill within a few weeks of the onset of a substantial...

Interested to know what you think now that nearly 50 votes have been cast, @Jonathan Edwards? What does the lack of a well gap for most (including me) suggest to you?