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Really valuable blog, @ME/CFS Skeptic , thanks so much. Exactly.

If a person chooses the hard task every time, or the easy task every time, their data is deemed invalid! So for the deliberate strategy you describe, you'd have to choose the hard task every time it makes any sense to, in terms of the size of the potential reward and the probability displayed...

Yes, the earnings for each of the 31 participants whose data were analysed are in the data available through MapMECFS. The excluded HV F does not feature as their data were not analysed. The highest earner (not including HV F) got $7.32. In the paper they state

Ah, OK, the research I have seen has not mentioned fructans. And the thrust of the paper discussion and discussion in the media is always "They think they're gluten-intolerant and they're not!" I don't think I've read any Norwegian studies.

Agree with others - the elimination phase is way too short. In these studies there's rarely (if ever?) mention of people who might be reacting to fructans in wheat rather than gluten. In the initial elimination phase of the low-FODMAP diet, you avoid wheat (and many other high-FODMAP...

I did. I didn't know why I felt rotten if I had a bath, or why I definitely needed a seat for the whole train journey in the morning but could stand for a bit in the evening, or why I wound my legs around each other when seated. But I do now!

I've read that people with higher physical activity decondition more than those with lower physical activity in those studies where they purposely decondition people - sorry, don't know which studies. That makes me wonder how they define deconditioning, and how they define more. Anyone know...

Sorry @bobbler , my brain isn't able to follow all of these posts fully, but I can see you've made good points. I just wanted to point out that in the documents written by Luscombe herself (I linked to them above), the restrictive diets she mentions are ketogenic and anti-candida (no...

I'm finding this website brilliant for giving you the information you actually want: https://www.wheelfreedom.com/ They're in Surrey, UK. At the end of their detailed product descriptions, there's a verdict section, where they link to other chairs that might suit aka the competition for the...

And this one sounds great: https://www.wheelfreedom.com/products/quantum-edge-3-stretto-powerchair :party:

That sounds brilliant for your trips to gardens. As you say, not for me because of the need for tilt, but I think it's good to have these recommendations on the thread so others can see them too! Yes! I coveted that and told the OT about it. But I also noticed that his corridors are two or...

That's very helpful.

Yep I should be able to do that.

Sounds wise. I wouldn’t be able to do anything for an hour, though, not even close, so even if I have something for a week my time-in-chair would be low. So my ability to test this out will be limited. I do, however, have a similarly sized sister who I might be able to convince to roll around...

Yes! She mentioned a website the rep uses and I found that brand, so I'm pretty sure that will be available to me. I had to print out the brochure because I could not handle all the scrolling! I have no transport needs as I can't go anywhere. Pity that it wouldn't take me to medical...

I would only be able to try some from home. I would have a very limited ability to try things out - just don't have the energy to organise my carers to organise it all.

Well a rep is going to come with the OT in a few weeks' time, and they'll be bringing 2 powerchairs apparently, just to start getting an idea of what might work for me. I don't know how big a range of chairs the rep will have access to. That's good that you know of power chairs that go...

That's something to look forward to.

It is exciting! Bit daunting too. We won't have funding but Mr Evergreen has a job and we will pay for what I need, within reason. So yes, we'll be buying it privately, but with a public OT providing assistance and a representative from a wheelchair company. Would rather buy a good one...

I am getting my first powered wheelchair, and would love to pick your brains. I will be using it indoors and on a future garden path, which will have a ramp right up to the door. Further ventures haven’t been possible for 10 years so those are the priorities. The OT is suggesting a mid-wheel...