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  1. Chestnut tree

    Preprint Hypothesis: A Mechanical Basis: Brainstem Dysfunction as a Potential Etiology of ME/CFS and Long COVID, 2025, Jeff Wood, Kaufman et al.

    What is JHS?
  2. Chestnut tree

    Coping with heat

    It is horrible :sweat: but the graphic did give me a giggle. My brain feels on fire too. It sucks. I think we deserve a cool room with cooling nebulizers.
  3. Chestnut tree

    News from The Netherlands

    For people reading this thread, what formatting do you prefer on the Parliamentary questions? The first one; - a one page screen shot in silver gray (see the Bikker questions) - several pages, but bigger font (see the Bushoff questions)
  4. Chestnut tree

    UK House of Lords/ House of Commons Questions

    I checked in dark mode and it is still difficult to see. Thanks for working on it.
  5. Chestnut tree

    Coping with heat

    If they have more mass, I would guess they would.
  6. Chestnut tree

    Coping with heat

    Yes, I meant these ones.
  7. Chestnut tree

    Coping with heat

    Are packs the flat ones? That you can put on your face/knees?
  8. Chestnut tree

    TNF blockade induces a dysregulated type I interferon response without autoimmunity in paradoxical psoriasis, 2018, Conrad et al.

    Is psoriasis confounding with a hygiene issue or do you mean skin issues in general?
  9. Chestnut tree

    TNF blockade induces a dysregulated type I interferon response without autoimmunity in paradoxical psoriasis, 2018, Conrad et al.

    I know one was very severe and tubefed but now seems to be in remission Here are some quotes of other people on the forum, do not know their severity If I remember correctly read on X and another forum of skin issues as well.
  10. Chestnut tree

    TNF blockade induces a dysregulated type I interferon response without autoimmunity in paradoxical psoriasis, 2018, Conrad et al.

    My skin issues started when I got sick. Not psoriasis as far as I know. But what it is has never been confirmed with certainty. I have heard from others who have skin issues.
  11. Chestnut tree

    UK House of Lords/ House of Commons Questions

    Unfortunately this is not cynicism, it is how government communication works these days. I understand this is a suggestion from your side, so it is not sure if the plans will be announced on the same day.
  12. Chestnut tree

    UK House of Lords/ House of Commons Questions

    Smart, because that would bury the ME plan
  13. Chestnut tree

    Coping with heat

    The cooling things that are in your freezer that you can put in a cooling box?
  14. Chestnut tree

    Coping with heat

    Would cooling elements be better?
  15. Chestnut tree

    Coping with heat

    Would it be possible to have a tiny fridge next to your bed where you put cooling packs in? Oh and I see there are mini freezers too However not a cheap option
  16. Chestnut tree

    Coping with heat

    I wish I had a fridge big enough to put my bed in. I was looking at the cooling mats for dogs and I am wondering how cool they get and if they are breathable.
  17. Chestnut tree

    News from The Netherlands

    English translation of the parliamentary questions of MP Julian Bushoff of Pvda/GL (Dutch labour and Green Left)
  18. Chestnut tree

    News from The Netherlands

    Nieuwe Kanervragen over MEcvs door Julian Boshoff van Pvda/GL
  19. Chestnut tree

    News from The Netherlands

    Does anyone know why the policy for children with mecfs in the Netherlands was not adjusted after the Gezondheidsraads 2018 report?
  20. Chestnut tree

    News from The Netherlands

    Translation: Parliamentary Questions by MP Bikker from the ChristenUnie on exhaustion disease MEcvs
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