Search results

  1. M

    Maeve Boothby O'Neill - articles about her life, death and inquest

    The above contains the text of my complaint, the same day the Regulation 28 Prevention of Future Deaths report was issued following the Inquest into the death of Maeve Boothby O'Neill. This following is copied from...
  2. M

    Clare Gerada: influence on UK medical practice and ME/CFS management

    Ring fencing of funds for healthcare is being removed, with only ring fencing for mental health to remain in the new NHS 2025/2026 priorities and planning guidance. 2025/26 priorities and operational planning guidance There has been some reaction against this, among which is from the King's...
  3. M

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    and the obvious conclusion to that being that when we die, we really did bring it upon ourselves through behaviour and chronic deconditioning, as the current 2024 (re-dated 2019 review) implies, because the therapy causes no harms at all, and that's why there'd be no need for a reporting...
  4. M

    Placebo effect discussion thread

    Snap! My copy ended up in a charity shop.
  5. M

    Clare Gerada: influence on UK medical practice and ME/CFS management

    The UN Special Rapporteur of the Committee for the rights of persons with disabilities calls such things as trauma inducing instead of trauma informed.
  6. M

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    You've just described in your last paragraph exactly my 6 week experience of CBT and Activity management in a clinic, diagnosed under the 2007 NICE guideline and PACE trial results in 2011. My form filling was worse on fatigue but I felt better on everything else. I had been given tools to help...
  7. M

    Understanding Chronic Fatigue Syndrome – Workshop with Dr Bruno Silva [North Staffordshire Combined Healthcare NHS Trust]

    From the OCPD Foundation Co-morbidities include eating disorders, as well as anxiety and depression. Comorbidities — The International OCPD Foundation Treatments include CBT, ACT and Exposure Therapy. Treatments — The International OCPD Foundation All of which seem to be the treatment...
  8. M

    Understanding Chronic Fatigue Syndrome – Workshop with Dr Bruno Silva [North Staffordshire Combined Healthcare NHS Trust]

    OK thanks Kitty. I just don't want this to get lost on Youtube ss it's importance evidence.
  9. M

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    Doesn't a chronology really show up how bad this has really been. Well done. One could also argue that Cochrane's actions in December 2024 IS a response and that, in and of itself, is reason to escalate. Therefore, giving them a further 3 weeks is a very reasonable attempt at reaching a...
  10. M

    Mind and Body in the Guardian again

    Here's another news article last week for balance. Doctors refused to remove young woman's ovarian tumours 'until symptoms got worse' Daily mirror 22 Jan 2025, a 22 year old woman
  11. M

    Clare Gerada: influence on UK medical practice and ME/CFS management

    Oh dear, Mr and Mrs seem somewhat exercised this weekend. Fourth day of the House of Lords debate at report stage of the Mental Health Bill early next week. (excerpt from the King's Speech at the opening of Parliament 17 July 2024) Did the 'heartsink' patient gp training module (I had to...
  12. M

    Deep Sequencing of BCR Heavy Chain Repertoires in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2025, Ryback et al

    I can confirm that from personal experience. In fact they ignore all your symptoms including medicine intolerances.
  13. M

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    Do take care Trish. I'm already crashing from the limited amount of cognitive stuff I've done today, and your letters are detailed and in depth.
  14. M

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    Am I correct in thinking that the 2019 now 2024 review without the suggested editors note from the IAG only includes research on mild/moderate cases of CFS/ME? If so, then this republished review as it stands will be used to support activity management based on a deconditioning/behavioural...
  15. M

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    YES! ETA: Carol Monaghan SNP read out in the Westminster Hall debate in 2018, an extract of a letter she received from someone who participated in the PACE trial.
  16. M

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    From the Editor's note published 2 October 2019 In Hilda's latest blog she mentions over 100 criticisms received.
  17. M

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    and I'm sure I read somewhere that they adhered to COPE Publication ethics: An introduction to COPE Retracting an article when an institutional review concludes no misconduct | COPE: Committee on Publication Ethics
Back
Top Bottom