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Awww heck @Evergreen yes it does. I was 'actively' avoiding reading through those weighty tomes, just not within my cognitive capabilities. For example, this quote: "Faculty of Sport and Exercise Medicine (UK) “Fundamentally, this guidance abandons the first principles of rehabilitation and...

Fascinating. Can anyone let me know whether chronic fatigue syndrome and/or ME is listed under a Specialty in the ICD11?

No, that's my bad, thank you well spotted. My apologies Wessely. I was looking for a specific article and couldn't remember what year it was, not related to MIS or MSI at all, but you can't narrow down the year on that site, so it comes up with everything. I was intrigued by what it was so...

Thank you that's really useful information.

That's certainly how children, students in college and university will view it. It's how I viewed it as a 40 something adult. Your points about pacing are fundamental to the debate. In this article from the MEA following the publication of the new NICE guidelines the understanding was...

@Peter Trewhitt everybody's contribution towards the science discussions, treatments, the documents they've shared, their own individual area of reasearch and expertise, their opinions, and their experiences, the journalist exposes, the experts in different fields, have helped me focus my...

We hear you @Alis This has been my last straw. I'm taking formal legal advice this week. Will update forum in due course. I have both a social services care plan for the ME and also a CPA because I was sectioned. Under the new NHS Long Term plan these can be merged. I now know why social...

Evidence of ACT in use : Qualitative study of the acceptability and feasibility of acceptance and commitment therapy for adolescents with chronic fatigue syndrome (bmj.com)

Exactly @NelliePledge I have a social care, care plan that does that. But what you are agreeing with the GP is also a treatment plan. Imagine they're treating us with a blood therapy and while the drip is in our arm and the plasma is flowing they're sat in front of you negotiating your...

Nailed it @Jonathan Edwards . It looks and sounds to me like it's an encroachment into the NHS requirement to provide a care plan for a patient with any chronic illness or condition has and for that patient to have a copy of it, as was also a requirement in the 2007 Guideline, I believe if...

As a result of the CMO's report in 2002, the government of the day funded new England-wide specialist CFS/ME Clinics to the tune of £8.5m. Multi-disciplinary HCPs but those were: " physicians, dietitians, occupational therapists, physiotherapists and psychologists." Page 2 point 3 of this...

Wouldn't it.

My point exactly. If you get a chance and are up to it, listen to the podcast in @Dolphin 's post today. Nancy Klimas is interviewed, but the podcasters chat about how they are with their Long Covid before that. All the tests and referrals they've had. Health inequality is an issue. I...

Are ME/CFS patients still banned? You used to be able to check on the illness list.

Yup, that's better.

Compare with this situation. Multisystem Inflammatory Syndrome in Children (MIS-C) > Fact Sheets > Yale Medicine Covid-19 and this view of MIS publicly expressed and reported on 2 July 1999 in the Bristol Evening Post Results for 'simon wessely' | Between 1st Jan 1950 and 31st Dec 1999 |...

Evidence of ME/CFS patient experiencing harm through insistence on following the BPS model of ME/CFS, which liaison psychiatry refer to the 'grey' area, and thereby denying standard clinical tests until a formal complaint was raised! United Kingdom: Leeds and York Partnership - CFS centre I...

I didn't appreciate this article at all. Perhaps The Canary could find the time to listen to this, if they haven't already. Anaesthesia on Air / The perioperative management of patients with ME and Long COVID (audioboom.com) with Dr Shepperd MEA and Helen Baxter 25% Group working...

Oh they can definitely be sued, it's highly doubtful that anyone has given informed consent, but if they weren't harmed by treatment, then there has been no medical negligence in terms of treatment. However, if you were harmed by treatment, then a potential claim in tort exists. That's the...

This analysis of one interview is too much: One of the other big things is also getting friends and family and work to understand what's wrong with you [mmm]. You feel, I’ve felt many times that I'm just a fraud [mmm] and that I'm just er, work shy, lazy, hypochondriac (S10 048). The lack of...