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    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Yes and here is the safeguard Rehabilitation (who.int) "Misconceptions about rehabilitation Rehabilitation is not only for people with disabilities or long-term or physical impairments. Rather, rehabilitation is an essential health service for anyone with an acute or chronic health condition...
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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Ahhh I seee. :facepalm: I finally get what you're saying, sorry I made you work so hard in explaining @JemPD :) Thanks.
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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Exactly, I've learned to always look for where, when as well as what is being said.
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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I see what you're saying, but I've only today caught up with this aspect and the White paper etc., as my own review of PIP has been extended because of the backlog the DWP have. I've just re-read the white paper and it introduces the new SDG as one group specifically for those with severe...
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    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    I wonder if this at the root of the problem with these hospitalisations? Somatic Symptom Disorder - StatPearls - NCBI Bookshelf (nih.gov) Last Update: March 13, 2023. It certainly ties in with the increase in such cases last year and this. "Introduction Somatic symptom disorder (SSD) is a...
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    Persistent physical symptoms after COVID-19 infection and the risk of Somatic Symptom Disorder 2023 Horn et al

    And this is where SSD ends up a year later in the UK UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)
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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    This is an outrageous denial of basic human rights and is in direct contravention on the UN Convention on the rights of disabled persons! from the government page on severe disabiity group test information for clinicians: "Syndromes characterised by chronic pain and fatigue syndromes...
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    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    However, applying for DOLs gets round the problem of having to inform the patient of any alternative diagnosis, obtaining consent and imposing any 'treatment' they like to the process.
  9. M

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    I've highlighted this this morning referening the CMO 2002 United Kingdom: Science Media Centre (including Fiona Fox) Here's the parliamentary brief which set up the review Chronic Fatigue Syndrome/ME (parliament.uk) Research briefing 1998 "Summary of main points This paper discusses the...
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    United Kingdom: Science Media Centre (including Fiona Fox)

    Last two pieces and then that's me for the day. 3 months after the Chief Medical Officer's report on CFS/ME in January 2002, this debate took place in the House of Lords on 16 April 2002 Lords Hansard text for 16 Apr 2002 (220416-19) (parliament.uk) "The Countess of Mar rose to ask Her...
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    United Kingdom: Science Media Centre (including Fiona Fox)

    There's this open letter from the Countess of Marr in December 2012 Open letter from The Countess of Mar to Professor Simon Wessely | 4 December 2012 - The ME Association A couple of months after Wessely was awarded the John Maddox price for 'courage' in standing up for science. At the...
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    United Kingdom: Science Media Centre (including Fiona Fox)

    There's this published by the SMC publications for scientists | Science Media Centre second document down under title "Advice for Researchers experiecing harrassment" the download is a 2019 document. "All researchers should expect their work to be scrutinised by the public, policy makers and...
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    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    The 'watchdog' of this vision is the CQC and the Health and Safety Act 2008 (Regulated Activities) Regulations 2014 is just one route and S.20 is the 'Duty of candour' legally requiring honesty and accountability.
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    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    Thanks, I'm too exhausted to explain at the moment.
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    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    Revised-Never-Events-policy-and-framework-FINAL.pdf (england.nhs.uk) "S 3.1 Never Events are defined as Serious Incidents that are wholly preventable because guidance or safety recommendations that provide strong systemic protective barriers are available at a national level and should have...
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    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    Regulation 20: Duty of candour (regulation in full) - Care Quality Commission (cqc.org.uk) CQC Updates Guidance On The Duty Of Candour – Ridouts Solicitors (ridout-law.com) Prosecutions under s20 Duty of Candour CQC Continues to Enforce Duty of Candour - Lester Aldridge
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