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I've just seen the news item on the Channel 5 news on Carla's situation. This should be reported immediately to the CQC as a serious breach of the Health and Social Care Act 2008 (Regulated Activities) Regulations 2014 by the Trust. Ignoring the NICE Guideline on ME/CFS with the specific...

I think my biggest concern is the inclusion of severe patients in any outcome measure, since no research has taken place looking at how activity management a la crawley/gledwell et al will affect that patient group. Unless I'm wrong and there has been. What does the ethics approval on this...

:jawdrop::thumbsup: Let's see if I can remember how to do it next time!

I've only been able to skim this so far but athat has clarified a few of my queries, but these issues shout out to me: Each and every review of the care plan is a new CONSENT point. Here the patient is providing all necessary information to the clinician. This is the point where the...

I can't work out this multiquote thingy so I'll answer your questions by paragraphs: Para 1: Yes he did and I knew because he sent me a copy at the time. He'd had to sign me off work again as a result of the fact that 2 days after the conclusion of the 6 week course I'd completely collapsed...

Well that didn't quite work. :banghead: This is what's missing from my attempt at multiquoting. Maeve was definitely in my thoughts as i was completing my rsearch on this, as were the two young ladies currently in hospital. In the Supreme Court today is a hearing involving this case...

I'm trying this multiquote thing, so if it goes completely wrong please don't judge as my brain feels like it's in a black hole at the moment! In complete agreement with this: OK, that's no problem. I'll chat with you later, if that OK, today's Post Office Inquiry is about to start and...

All but one of the authors are Bristol based, with one attached to Stirling and Edinburgh, (11 June 2021) Differentiating Functional Cognitive Disorder from Early Neurodegeneration: A Clinic-Based Study - PMC (nih.gov) Abstract Functional cognitive disorder (FCD) is a relatively common cause...

Great piece of investigation @bobbler Walk and talk is a mental health therapy. Veterans have been doing this on an informal basis for years and years when they weren't getting access to any help for mental PTSD. It's caught on with the civilian population a bit like the park runs, and now...

Even with the rapid review it still took more than a year for a statement of position to be released by RCPSYCH, so no, not quick enough.

Correct, they don't follow up. On completion of the 6 week course, clinic wrote to my gp praising how well I had engaged with the treatment, even before they wrote the letter I was already on my back and never worked again. My gp replied that unfortunately I was continuing to deteriorate and...

Just had a look at this Severe ME/CFS Resources Archives - BACME "Primary care would normally be the first contact for people living with severe ME/CFS. It can be difficult for patients and professionals to clarify how to best meet the needs of the individual. However, appropriate intervention...

Post copied from the BACME news thread. 2024 updated version. Just had a look at this Severe ME/CFS Resources Archives - BACME "Primary care would normally be the first contact for people living with severe ME/CFS. It can be difficult for patients and professionals to clarify how to best meet...

I think, only think mind you, that I may have discovered a route to what's needed. I've been doubling down on my research covering the legal aspects and contra-indicated practices based on the evidence based NICE Guideline, during this weekend. There have been a number of reviews and reports...

Speaking from my own personal experience, they didn't even follow up my failure to return the 6 months follow-up. I was too ill to complete it and my husband was too busy, caring for me and helping out his disabled parents. There was nothing except a letter to my GP to say how well I'd...

There is no excuse for a protocol not have been written in the last 18 years! That is a choice. It was also a choice to try to section her mother who, if my memory serves correctly was a nurse herself. Sophia Mirza - Wikipedia ETA8 Apparently, the professional governing bodies to whom Criona...

I struggle greatly to follow it myself, to be honest, not ever been an interest of mine. Is that why Ron Davis' at Stanford study was so small, or am I misremembering. Because if I grasp what you're saying (and I'm only running on adrenline only at the moment) have the MRC and NIH taken us...

Sophia's voice 2005. Severe ME Week 2020: Sophia's Story - The ME Association Ditto for me. ETA: standard treatment for PPD is CBT. That was not even suggested when I was sectioned between the beginning of October 2020 - 2nd February 2021. The only CBT I had was in BATH. ETA2: When Avon &...

This is torture. It's as if they want us to kill ourselves.

I asked her if they were part of the study and she said they hadn't heard of it!