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I had bloods taken today lovely young trainee nurse doing a home visit. My usual lady is on holiday. My young lady today told me she also has ME and has had it since she was at school. I also discovered that her sister who is also a nurse, and also has ME/CFS also had it as a child. They had...

Invest in ME - Statements of Concern about CBT/GET provided for the High Court Judicial Review of February 2009

Regulation 14: Meeting nutritional and hydration needs - Care Quality Commission (cqc.org.uk) Regulations for service providers and managers - Care Quality Commission (cqc.org.uk)

Also on 13 December 2023 Attribution of neuropsychiatric symptoms and prioritization of evidence in the diagnosis of neuropsychiatric lupus: mixed methods analysis of patient and clinician perspectives from the international INSPIRE study | Rheumatology | Oxford Academic (oup.com) This post...

Copied post Also on 13 December 2023 Attribution of neuropsychiatric symptoms and prioritization of evidence in the diagnosis of neuropsychiatric lupus: mixed methods analysis of patient and clinician perspectives from the international INSPIRE study | Rheumatology | Oxford Academic (oup.com)...

13 December 2023 Consumer rights Live seminar: Mind-body, neural pathway disorders as a way to explain chronic fatigue syndromes. (coffi-collaborative.com) "As informed consumers, we were staggered to find that there is a huge literature out there on mind-body, neural pathway disorders. This...

Moved posts "The Consumer Advisory Committee comprises of individuals who have first-hand experience with post-infective fatigue or chronic fatigue syndrome, either as sufferers themselves, or as next-of-kin. The Scientific Advisory Board consists of distinguished researchers in the field who...

My issue with PROMs is that, to use their own words, in every bit of research I've seen, and I didn't have to read research until after i was treated, is that it is portrayed as 'perception' or 'perceived'. Meaning, become aware of (something) by the use of one of the senses, especially that of...

These are the guidelines they have to follow. Trouble is, when you spend decades ignoring the most severe and siloing them, in dualistic way, you learn nothing. That's why they're stuck = so when there's something strange in the neighbourhood, so who ya gonna call... BAPEN Principles of Good...

Came across this 2020 paper yesterday as I was sniffing around, Concepts and controversies of malingering: A re-look - ScienceDirect Reminded me of the Woodstock festival in 1969. All I've got to say is SNAFU

Listening to Songbird reminded me of this today Stevie Nicks - Wikipedia

On 12 May 1994 Wessely delivered the 9th Eliot Slater lecture at the building in Queen Square. London, the former site of the National Hospital for Nervous Diseases, where Slater worked in a senior position for many years. The last words of his speech were this: "For as long a psychiatry...

One would expect the UK government to have the same sense of urgency if they really believed they were honouring both the letter and the spirit of Article 12 - UN Right to health, endorsed by the World Health Organisation. Afterall, it's not new as this fact sheet No.31 published 1 June 2008...

I suspect the government of extracting the michael - 3,000! Women's Health Strategy: Call for Evidence - GOV.UK (www.gov.uk) It took them 6 months to analyse responses from 100,000 individuals, and 436 organisations and individuals with expertise in the area. Why the inordinate delay...

and that's because it's based on the fact that the only thing stopping you from improving is your fear of returning symptoms and deconditioning. "The Glass Cage" 1994.

Interesting element that never appears in research.

Yep :banghead: I remember stating in group after week one, that planning and filling in the diary (whilst actually trying to work reduced hours and fit in the all homework)on top of daily life events outside of my control and which weren't manageable, plus the additional 2hr per week session...

On the Science Direct website this is under a page in 2022 Type-D Personality - an overview | ScienceDirect Topics Health Psychology Keen Seong Liew, ... David S. Krantz, in Comprehensive Clinical Psychology (Second Edition), 2022 8.13.2.5.5 Type D Personality “Type D personality (or...

This paper was included in a Special Issue of the Journal of Psychosomatic Research in August 2001 on the topic of Sleep and fatigue. Journal of Psychosomatic Research | Special Issue-Sleep and Fatigue | ScienceDirect.com by Elsevier Among several papers was this one: 2001 – Increased vital...

cont'd 4. Access to work, totally separate from clinic and available to all, help with changes in the working environment, such as ground floor office, a quiet area for rest periods, taxis to travel to work, as I was unable to drive by that stage. I had that all lined up and arranged...