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  1. M

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    But, am I correct in understanding they can withdraw entire reviews, or exclude certain pieces of research from a review, on various grounds which relate to patient safety and they are required to write a protocol, and protocols are very specifically detailed in the DoH?
  2. M

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    Basic question from a non science background. Does Cochrane have an ethics committee, and are the systematic reviews considered 'research' on human subjects for the purposes of the Declaration of Helsinki (both the 2013 and 13 December 2024 versions?) I'm guessing it does because a protocol...
  3. M

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    Yes, and he together with the all the international signatories to the 'anomalies' opinion piece in July 2023 form a thread.
  4. M

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    I see Kate Kelland in Reuters wrote this. Wasn't it her who did that interview with Sharpe in 2019 quoting David Tuller? This from the link There's your smoking gun. Merry Croft died 23 May 2017. Context and timing is crucial. And they've done it again now, especially during the ME/CFS...
  5. M

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    Don't worry, I've now fully read Hilda Bastian's blog. I have what I needed. These advocates, to quote Hilda are really stupid or desperate, I can't work out which. Either way, neither is a defence to the unimaginable harm they have caused for decades.
  6. M

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    Especially important because, unlike with medicine, there is no formal reporting system for harms from these type of therapies making the recipients of such therapies particularly vulnerable, as the UK Regulation 28 Prevention of Future Deaths report dated 7 October 2024 establishes. That...
  7. M

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    Wait, what? This has already been withdrawn once. Can someone point me to the info on why, when etc?
  8. M

    Functional neurological disorder in multiple sclerosis: A prospective study, 2025, Cuoco et al.

    Yes he did, and he received better from the other consultant. We all deserve better. However, and this is the only reason I would ever say this, I'm glad he didn't survive another five years otherwise he would have been referred to the fatigue clinic for cancer related fatigue and been...
  9. M

    Functional neurological disorder in multiple sclerosis: A prospective study, 2025, Cuoco et al.

    THIS all day, every day! I had a brother and sister-in-law (siblings) of my late husband who had severe eczema as young children who both went on in later life to develop both types of MS, progressive and relapsing and remitting. Both were dead by 45 years old. My husband (their older...
  10. M

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    Is this question on harms what prompted L Larun out of the shadows after 10 years? Timing is crucial. Why respond now especially after the abrupt re-dating of the existing review in December 2024? So, it's time to be reminded of an extract from the response from NICE by Barry et al...
  11. M

    Improving GPs’ approaches to functional somatic syndromes: a pilot training program with a focus on compassion & communication, 2025, Ariane

    Fell asleep watching the House of Lords this afternoon while they debated the Mental Health Act Bill. Apart from an argument that part of the bill seeks to grab Henry VIII's powers inappropriately in the used of ECT, I learned a new phrase: supply induced demand.
  12. M

    NHS England Launches New E-learning Module on ME/CFS, 2024

    Yes, Chapter 2 Assessment and Diagnosis under section titled Aligned and Overlapping Diagnostic Conditions
  13. M

    NHS England Launches New E-learning Module on ME/CFS, 2024

    Stumbled across this a little while ago, published during the consultation period for the Interim Delivery Plan Sept 2023 A revitalized biopsychosocial model: core theory, research paradigms, and clinical implications - PubMed Derek Bolton Emeritus Professor of Philosophy and Psychopathology...
  14. M

    NHS England Launches New E-learning Module on ME/CFS, 2024

    From another thread Improving GPs’ approaches to functional somatic syndromes: a pilot training program with a focus on compassion & communication, 2025, Ariane | Science for ME From the Consultation outcome 19 December 2024 The basics of healthcare for pwME remain exactly the same in...
  15. M

    NHS England Launches New E-learning Module on ME/CFS, 2024

    This is a live learning programme which my GP can look at today? From the Overview 4. What is the prognosis of ME/CFS? What is the ‘right specialist intervention’? Where's the evidence for this improvement, PROMS? And it conflicts with this statement under 'how else can ME/CFS impact...
  16. M

    Protocol Serial Paediatrics Omics Tracking in [ME] (SPOT-ME): protocol paper for a multidisciplinary, observational study..., 2024, Armstrong+

    On that child's medical notes for life: potentially influencing every subsequent diagnosis and treatment (or lack of it), they ever receive. Without the knowledge of the parents or the child going into adulthood. I find this truly shocking, if I'm understanding that correctly.
  17. M

    When you can't find the words: Using body mapping to communicate patients' experiences of Long Covid 2024 Jokela-Pansini et al

    And lastly, there’s this from 2017 The Body Map Theory | Mind the Body: An Exploration of Bodily Self-Awareness | Oxford Academic
  18. M

    When you can't find the words: Using body mapping to communicate patients' experiences of Long Covid 2024 Jokela-Pansini et al

    But the article also produced this from the GP from Manchester quoted in the article. People from ethnic minorities seeking help for long COVID: a qualitative study | British Journal of General Practice 2024 [block text broken up for ease of reading] So that's useful.
  19. M

    When you can't find the words: Using body mapping to communicate patients' experiences of Long Covid 2024 Jokela-Pansini et al

    From the study, published July 2024: Same authors published this in May 2024. [block text broken up for ease of reading] Scopus preview - Scopus - Document details - Creating safety amidst chronic contamination: A mixed-method analysis of residents’ experiences in a Southern Italian steel...
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