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Like you've been busy doing in Northern Ireland today, I notice from Brian Hughes post.

Thank you. Thanks to everyone who contributed, thanks for listening, thanks for hearing and thanks for acting, as always.

Who's to say they're not doing both when there has been no method of officially reporting harm from psychosocial treatment similar to the yellow card scheme? That only changed in Oct 2023 when the HSSIB relaunched, but it has not been tested yet on this subject matter.

The ability to silence a story is inextricably linked to the power to do so. When, when have pwME EVER had that power.

I think the NHS as a whole needs to properly answer this question, transparently, in it's reply to the Regulation 28 Prevention of Future Deaths report, as it encompasses treatment under both the 2007 and 2021 Guideline.

May not be relevant, my ability to even slightly read a scientific research paper, never mind understand it, was limited to null prior to my treatment under the NHS 12 years ago, and it's not much better now. However, even BACME are citing Madi Hornig et al from 2015 Distinct plasma immune...

also means no expensive extensive testing such as MRIs etc.

I just asked my carer because she can always tell when I'm in a crash. She says she can tell as soon as she walks in as my eyelids and around the eyes become puffy.

That is a shockingly low number of donors. How many globally directly benefit from David's ongoing work and referencing it, just in the ME patient group, then add in Long COVID.

That's a best seller right there.

Is she describing 'stop' and visualisaton techniques - the Lightening Process? Definition of heretical of or relating to adherence to a religious opinion contrary to church dogma : characterized by heresy heretical writings 2 : of, relating to, or characterized by departure from accepted...

Interestingly he refers to 'activity' on 18 Oct which is referred to in the 2021 guideline and not GET which was excluded as a treatment from that guideline. Absent , as always, is any mention of consideration for patient safety.

:D

I clicked on link and I arrived at a page asking for verification that I was a human. As a pwME obviously I didn't qualify so came back out. :android:

You could just leave them empty to represent those who have been permanently silenced.

I think Dr Jake Hollis may be referencing from this: Socioeconomic Deprivation, Adverse Childhood Experiences and Medical Disorders in Adulthood: Mechanisms and Associations. Morris G, Berk M, Maes M, Carvalho AF, Puri BK. Mol Neurobiol. 2019 Aug;56(8):5866-5890. doi: 10.1007/s12035-019-1498-1...

:rofl: I remember this, absolutely brilliant!

Thanks Valerie. I remember reading your view of it quite a while ago, but I'll refresh my memory on it now. My first thoughts, depending on what he's arguing, went to Article 8 Access to Justice.

No access Liability for psychiatric illness - ScienceDirect Liability for psychiatric illness, Wessely S, Journal of Psychosomatic Research, Volume 39, Issue 6, 1995, Pages 659-669, ISSN 0022-3999, https://doi.org/10.1016/0022-3999(95)00067-S...

Anyone know where the source of this info may have come from?