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Thank you George Monbiot, although it has taken me ALL day to read through it. So before I crash for another few days, here's my take away from it. In one of the links in the body of the article dated 1st November 1998 , I discovered that George has been writing about this for a very long...

This.

Yes, exactly that, and thanks for putting a name to it. I do that kind of thing everyday in little ways, like you say, as we all do. The pasta incident was at my worst. Although the submerged hand and wrist were immediately bright red, absolutely no pain for at least 24 hours, boy did I...

I have a relevant anecdote to share on this. After a 12 month period of bedbound with severe ME/CFS immediately on completing the NHS management course, I began to slowly increase activity (using 50% of energy envelope to the point where in the spring of 2013 I could spend 20 mins a day on a...

There have been a number of questions raised in the House of Commons since 7 Oct, the day the Regulation 28 report preventing future deaths was issued. Sorry I don't know how to set them out like @Sly Saint for easy reading. Most are holding answers with one substantive answer being provided...

This is essentially what the Montgomery v. Lanarkshire case on the question of informed consent decided. It is the second time on this thread where I've had occasion to reference it, the last was 6 months ago with the last survey. This time I've found a 10 min overview presented by a Doctor...

Milburn is definitely an older experienced head.

Merged "The chairman of NHS England has announced he is resigning, saying it was a “very difficult decision”. Richard Meddings, who has been in the role for almost three years, said he had notified Health Secretary Wes Streeting that he would stand down as chairman at the end of March. It comes...

My reading of it also, based on my experience in Bath in 2011 but without the care plan. At that time this took place in the initial consultation with the service following GP referral, which at that time was only for Mild/Moderate patients of course. After which you undertook the 6 1hr...

I think that bit's fairly standard. It was also in the MAGENTA trial consent for parents of CYP, to which the kids were also asked to Assent. I looked at it when it was published I think I recall calculating that the kids' data under that consent would be re-usable until they were in their...

I came to a screeching halt after reading the 'fields' under the Consent heading on page 1 Info and consent and the About You page. I did not waste my energy reading the Patient Information Sheet or the rest of the survey form. I cannot consent to this: Reasons: This is part of a set...

Done. Thanks never seem adequate enough. It's hard to believe that 9 years ago this month, we eagerly devoured every word of the first in the Trial by Error trilogy. I remember like it was yesterday; ignoring your pleas to us not try and read 15,000 words, all in one go to avoid crashing...

Firstly thank you for this. I haven't been able to read it all yet, but skimming through the comments, this comment from Wessely set off my internal BS detector alarms. Hasn't this already been deployed by someone else (can't remember where I saw it) as a counterargument to criticism of the...

Good find @Nightsong. I don't remember seeing this. Two things strand out for me: Here's the Peter White meta analysis he refers to which focuses on harm from treatment. It references ,Cochrane among other...

For an update on this please go to UK: Official Complaint Lodged with the DHSC re: Discrimination in the ME/CFS Delivery Plan Process | Science for ME (s4me.info)

I've just popped in from a six month absence due to severe PEM to let you all know that I have written to my MP. Wasn't sure where to post it, as it covers the missing report summarising the responses from the My Reality consultation a year ago, the Coroner's Regulation 28 Prevention of future...

Ditto to the comments regarding the inability to print off any completed questionnaires. No guarantee that clinic HCP will be able to access them - what's the point? These form part of your healthcare records and must be accessible to the patient. I've just completed the FUNCAP for the first...

Thanks @Trish and noted.

I cannot see that an apology has been received, or have I missed it? If a public apology has not been received, I'm adding the comments of Sarah Tyson @Robert 1973 refers to, and this thread, as additional evidence in the part of the cause of action referencing historical and ongoing...

Well spotted, they've added this text to the landing page. So we're expecting two things: Report summarising the actual responses received from the consultation period, and the final delivery plan.