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    biomolecules: Bioenergetic and Proteomic Profiling of Immune Cells in ME/CFS Patients: An Exploratory Study - Fernandez-Guerra et al - 2021

    What do you think about this paper which opens up new hypotheses in the understanding of neuronal bioenergetics: Efficient extra-mitochondrial aerobic ATP synthesis in neuronal membrane systems - PubMed (nih.gov)
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    Labelling Long COVID and ME/CFS symptoms in children 'mental health'

    Its concerning reading - Harms p19: It is possible that the questionnaires may make some vulnerable participants feel fatigued. [Worded to suggest its the participants fault for being vulnerable and feeling symptoms? The researchers should point out that participation could actually lead to...
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    Labelling Long COVID and ME/CFS symptoms in children 'mental health'

    I don't often post but this is a real concern see p7: Children and young people with Long Covid (CLoCK) (publishing.service.gov.uk). Study summary Study title: Tracking the impact of Covid-19 on the mental health of children, young people and families; follow up of a national longitudinal...
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    Multiple Sclerosis and ME/CFS - similarities, differences, misdiagnoses

    I know at least 3 families with both ME and MS sufferers (and now one with ME, MS and Long COVID)!
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    News from Canada

    Moved post
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    British Medical Association article: Long Covid - we've been here before, 2021, J. Trueland

    Hi Robert - I agree - I did make it clear in the interview that I'm a 'lucky one' and that many more would not be able to return to work at all or even get out of bed (perhaps the author considered that message might be a bit soon for post COVID and I know she was constrained by word count)...
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    British Medical Association article: Long Covid - we've been here before, 2021, J. Trueland

    Long COVID – we’ve been here before (bma.org.uk) Hope you can open the link OK?
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    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Major Impact on Lives of Both Patients and Family Members, Brittain et al, 2021

    Merged thread https://www.mdpi.com/1010-660X/57/1/43 Lovely little study and a small scale model that helped us prepare for the international research on ME/CFS impact on family members QoL. I know there is much more to be done, having spent half of this week in bed I have to think - baby...
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    Closed Recruiting: Measuring the Impact of (ME/CFS) on the Patient and Family using the EQ5D and FROM-16 questionnaire

    This is for communication only, it helps us ensure there is no duplication of respondents and we can issue a thank-you e-mail, the data is anonymous, stored safely and individuals would not be identified in published results. Some have forgotten their code and so it helps us get them back onto...
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    BMJ Rapid Response: Dr Nina Muirhead

    I hope this link works? Re: Long covid: doctors must assess and investigate patients properly | The BMJ Long covid: doctors must assess and investigate patients properly BMJ 2020; 371 doi: https://doi.org/10.1136/bmj.m4583 (Published 02 December 2020)Cite this as: BMJ 2020;371:m4583 I just...
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    Closed Recruiting: Measuring the Impact of (ME/CFS) on the Patient and Family using the EQ5D and FROM-16 questionnaire

    My biggest fear is if my children get ME and we are no further forward.
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    Closed Recruiting: Measuring the Impact of (ME/CFS) on the Patient and Family using the EQ5D and FROM-16 questionnaire

    Dear all, Its Nina Muirhead here! Thank you so much for all your support and Big Thanks to Andy for communicating. I've been very slow to get going with social media but am a fan of the group, just so limited on capacity. Today my wrists are agony from sending more than the usual number of...
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