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How are you doing now @chelby? Didnt hear anything from you in a long time. Is abilify still helping ?

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Found some studies done about Aripiprazole. First one suggest an antiviral component done by Aripiprazole https://www.hindawi.com/journals/crim/2010/836214/ The second one suggest a better brain perfusion and lowered IL-6 values. https://www.sciencedirect.com/science/article/pii/S0920996416301311

Prusty removed the complement pathway and the mitochondria went back to normal in his experiment. Thats a pretty big deal in my book tbh. I hope that ppl like Ron or alain moreau can recreate this with their Cfs model very soon. Definitely a lead that should be followed fast now.

@Helene thats kinda what i do. I try to keep it as seldom and low dosed as i can to not get a body dependancy. For now the 0,5mg on and off worked great for me without the need to up the dose to get the same reaction.

@sebaaa A friend of me tried it and got much worse pretty rapidly for the time he took it. So i restrained from it and dont have intentions to try it because the patient reports also arent really overwhelmingly positiv. Also i dont see a medical reason to do so. All things i tried, i followed...

I tried contacting Ron 2 times before but its like screaming into a forest. He seems super busy and gets to much mails everyday i guess. Yeah Phenytoin is pretty similar to benzodiazepine. With less body dependancy but smaller therapeutic window. I also tried Gabapentin and it did nothing for...

After some ppl asked me about some meds i tried, i thought i try to make a short summary. Maybe its helpful for someone or it sparks some conversation about them. Things i tried and didn’t work: LDN 2,5mg 2 months - nothing Plasma exchange 7 times in 10 days - nothing rituximab 500mg day...

Yea, i tried so many things since im ill and the only things that ever helped me was benzodiazepine/lorazepam and Phenytoin. Both cant be used for long sadly.

I asked a friend of mine who is a pharmacist to create me some 2,5 mg LDN. I used it over 2 months without any effect.

@Mithriel ever seen an older person with a heart condition ? Ive seen so many ppl with NYHA 4, global heart failure. They would outrun me everyday. A diastolic dysfunction is maybe a side symptom that worsen things but by far is anything profound in Cfs.

Well you could start with using Cfs blood and run it through a filter of different kDalton sizes to got closer to what you are searching for. Imo even this hasn't happened yet, what lets me think, none of the other scientists believes in the something in the blood tbh. We have 3 different...

I mean the easiest way is always to find an animal knockout model. If the PVN is really this inflamed and destroyed, create a mouse without a paraventricular nucleus and see how it performs. In fact, i just looked up some studies injecting some lipopolysaccharide into the PVN. The impact was...

@butter. 4mg loading dose followed by 2mg for about a month. Did nothing. Im bedridden most time of the day.

@Marky The "specific antibodies" we know of in Cfs, and you can ask Prof. Edwards he will agree with me, are found in many other diseases as side effects. Sure everyone needs to go find their own way right now to get better with this awful disease, but when 10 different autoimmune treatments...

I was hyped after the Ritxumab trail. I talked to a doctor and paid out of my pocket. It did nothing for me. I followed the autoimmune way over years now for Cfs. I tried MTX, 6 months cortisone, 1 month of sirolimus, 7 plasma exchanges. Im just done with it. The autoimmune part of Cfs is a...

$150.000? yeah, i think im done with giving my money to the OMF when its used to reinvent the wheel. Imagine using this amount for new, not 100 times tested before treatments like SS31 or suramin.

Mestinon seem like a big waste of time and money to me. So many ppl and doctors tried Mestinon over the years without big success. I tried it to. Besides playing with my blood pressure and making me more uncomfortable it didnt help. Kinda feel bad moment to see ME resources wasted on this again...