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Yes, and sometimes it's more serious than just looking terrible. Excel is not really fit to do publication-quality data and statistical analysis.

I spot Excel plots...

Maybe they said Covid guideline committee, not the long-Covid panel.

Not one mention of post-viral illness / syndrome / fatigue in the whole guidelines. It's as if a whole body of research—and the documented experience of millions around the world who became chronically ill after as virus—just don't exist, and didn't exist until Covid-19 came along.

Can I just say it's amazing that these papers even have to exist. We have watched in real time patients getting and remaining ill, and we've seen studies already showing that this is often because the virus is attacking different bodily systems and tissues. Yet CBT is still in the mix.

Long-Covid would encompass any prolonged symptoms something like 4 weeks + after initial infection. Post-COVID-19 fatigue syndrome would be a subset of long-Covid patients who have fatigue as a main symptom and the diagnosis would be given much later. NICE say 12+ weeks for...

File under post-modernist nonsense.

Just a note...this email went to my junk email folder. It might be worth asking those who have signed up to add an email address to contacts.

That's true, but I think the qualifiers in the statement ('viral-like illness', 'appears') make it ok.

I'm just finalising a response to the draft long-Covid guidelines. Anyone have a figure for the estimated percentage of ME/CFS cases that have a viral cause? I see a figure of 72% on MEPedia but that is for viruses and bacterial infections. Second, was it ever shown that SARS-Cov resulted in...

I didn't think this was a great video. Could have been so much better. Not sure the battery charging to 85% is a good analogy. Try 50% max. Cardinal symptom given as 'extreme tiredness'... etc. And yes, it looks like a sub-set of long-covid patients have post-viral illness and will progress to...

Yes, it remains just a theoretical model. What benefit will inclusion of the 'biomedical complex systemic disease stuff' bring to the therapy program? aside from perhaps giving the clinicians a slightly better medical education of how individual symptoms may be explained by dysregulation of...

Merged thread It seems that this is a prevalent theme that will form part of—or perhaps the basis of—BACME's approach in the future. This has been brought up in a few threads already (including in the discussion threads on the new draft NICE guidelines), but it's probably deserving of its own...

I'm not sure this is the case, especially with drugs that act primarily in the brain.

https://www.meaction.net/2020/11/12/important-news-from-jennifer-brea/?fbclid=IwAR3_GgqUDp3qe3woHXjeH04-n_sdapO-xKepc1EvJ4Gz0TTvCLXmo12st0U "Today we announce that #MEAction’s co-founder and executive director, Jennifer Brea, is going to be transitioning to a board position so she can take time...

I'm sure this point has been made earlier in this thread, or perhaps elsewhere, but this guideline revision takes quite a lot of stuff away but doesn't add much else. We are really left with self-management. Of course, this is much better than being given bad or potentially harmful advice, but...

They may be working on their response forms right now.

I found the document could have been formatted better, and the response form (a document based on tables in Word) is not ideal either.

Does anyone know if NICE are able to post out paper copies of the Guidelines? I do not have access to a printer, and staring at a laptop screen for hours on end is not an option for me.

Does anyone know if there is a template document for stakeholders to use for their responses to the draft guidelines?