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  1. InitialConditions

    [UK] Pain medication from GP

    It wasn't actually on repeat. I just asked for it again (outside of an appointment) and of course it has to be signed off by a doctor. A doctor told reception that I should take Ibuprofen because of the risks of Naproxen! I have booked an appointment to speak to a doctor about it. Hopefully when...
  2. InitialConditions

    [UK] Pain medication from GP

    I have just been denied a Naproxen prescription despite it being issued previously. I take Naproxen very sparingly, as evidenced by the fact my last prescription for it was 7 months ago! I have a doctor's appointment soon to discuss this. The doctor who issued the prescription has now left the...
  3. InitialConditions

    Simon Wessely on Covid-19

    Maybe more hypocrisy than irony.
  4. InitialConditions

    Simon Wessely on Covid-19

    This tweet is being discussed on this thread https://www.s4me.info/threads/bmj-letter-from-longcovid-doctors.16887/#post-288633 *Dies from irony*
  5. InitialConditions

    Pressure Point Threshold and ME/CFS comorbidity as Indicators of Physiotherapy Response in Fibromyalgia. Falaguera-Vera et al. 2020

    it looks like this isn't a paper that has been accpeted to a journal. This preprint site is run by MDPI, who are not well regarded.
  6. InitialConditions

    Pressure Point Threshold and ME/CFS comorbidity as Indicators of Physiotherapy Response in Fibromyalgia. Falaguera-Vera et al. 2020

    Yes, you see more and more of this. People who haven't had good training in how to write academic manuscripts. Apart from the last few sentences, this abstract reads like an introduction.
  7. InitialConditions

    UK writer with ME Susanna Clarke - press articles

    I like these New Yorker articles that you can listen to. Thanks for posting! https://www.newyorker.com/magazine/2020/08/17/the-musk-ox-and-me Totally not related but I enjoyed this recently.
  8. InitialConditions

    Robert Naviaux' Lab - News - from 2019 onwards

    This sort of concept would really describe my experience. Everything from lactic acid buildup, to problems with brain processing (possibly related to glymphatic system?), to the sleep disfunction.
  9. InitialConditions

    Open New York, USA: Assessment of N-Acetylcysteine as Therapy for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (NAC ME/CFS)

    Honestly, this seems like a waste of money to me. We would know by now if NAC had a significant effect on ME symptoms in a significant number of patients.
  10. InitialConditions

    CBT for CFS Therapist Manual PAEDIATRIC CFS TEAM, ROYAL UNITED HOSPITAL, BATH, UK Loades, M.E. & Starbuck, J. | 2020

    It would be good for someone to catalogue these NHS materials. Does anyone do this or know of anyone who does?
  11. InitialConditions

    Woken by horrible bone pain (?) in leg last night

    Thanks. My vitamin D level is fine, and is actually probably quite high at the moment because I'm supplementing with a 5,000 UI dose.
  12. InitialConditions

    Woken by horrible bone pain (?) in leg last night

    I don't take any medication really, and never knowingly had any problems with sugar or salt levels. But who knows.
  13. InitialConditions

    Woken by horrible bone pain (?) in leg last night

    Pain is not a huge issue for me. But last night I was awoken - must have been around 3 am - by a horrible deep ache in my right leg. It almost felt like bone pain. I think this has occurred a few times before in the past. I managed to get back to sleep after 20 mintues or so. Has anyone...
  14. InitialConditions

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    This is the paper the article is based on https://link.springer.com/article/10.1007/s11420-020-09777-1 Considerations for Return to Exercise Following Mild-to-Moderate COVID-19 in the Recreational Athlete "The COVID-19 pandemic has resulted in significant morbidity and mortality around the...
  15. InitialConditions

    Polish zoo to give elephants cannabis extract for stress relief

    I know one solution that would instantly lower their stress levels.
  16. InitialConditions

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I've seen several in the MESpine Facebook group, some of whom have got worse. A common theme is for them to blame the lack of progress or worsening on something else - usually tethered cord.
  17. InitialConditions

    Mitochondria May Hold Keys to Anxiety and Mental Health

    https://www.quantamagazine.org/mitochondria-may-hold-keys-to-anxiety-and-mental-health-20200810/ Research hints that the energy-generating organelles of cells may play a surprisingly pivotal role in mediating anxiety and depression.
  18. InitialConditions

    No Benefit of 3 Commonly Used Medications in MS Fatigue

    It needs to be stated again that medicine really doesn't understand fatigue, nor know how to treat it.
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