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  1. InitialConditions

    USA: InCellDx Dr Patterson - New lab service offering cytokine tests to Covid longhaulers

    This looks highly suspect (and I'm not just talking about the website's aesthetics / design). The Myhill mitochrondia test comes to mind....
  2. InitialConditions

    Guardian: Long Covid is very far from ‘all in the mind’ – but psychology can still help us treat it - by Carmine M Pariante, April 2021

    I don't think we learned much. As I said to David Tuller yesterday—and others may disagree, but this is my personal opinion—I think there's enough biomedicine and biology in Pariante's work for it to be taken seriously. Any work on brain inflammation and central fatigue may prove important to...
  3. InitialConditions

    Guardian: Long Covid is very far from ‘all in the mind’ – but psychology can still help us treat it - by Carmine M Pariante, April 2021

    Edit [Pariante interview] starts at 2:19:00 - the segment is much longer and involves a long Covid patient before Pariante.
  4. InitialConditions

    Guardian: Long Covid is very far from ‘all in the mind’ – but psychology can still help us treat it - by Carmine M Pariante, April 2021

    Did anyone manage to listen to this? I can't seem to find an option on the BBC London site to listen back.
  5. InitialConditions

    NICE ME/CFS draft guideline - publication dates and delays 2020

    I can't respond to any comments this afternoon, as I need a break. Maybe this evening. A reminder that the FOI materials are linked in the post. Unfortunately, there are lots of emails in separate files and they are not in chronological order. The filenames of key emails are referenced in the blog.
  6. InitialConditions

    NICE ME/CFS draft guideline - publication dates and delays 2020

    It is not 100% clear that the guideline panel has gone down the route of this further analysis to address GRADE indirectness, but I'm 90% sure from the emails that they have. As I state on the blog post, I feel this is primarily to address stakeholder comments, and not to make significant...
  7. InitialConditions

    NICE ME/CFS draft guideline - publication dates and delays 2020

    There's no evidence the 'reanalysis' is a full reanalysis, or that it has been prompted by critical comments on the draft. It may well be due to comments from patient groups or charities. I really don't know who was prompted this; it's not clear from the FOI request because those details (the...
  8. InitialConditions

    NICE ME/CFS draft guideline - publication dates and delays 2020

    I decided to publish this blog post today, rather than add further details that probably aren't needed at this stage. This has been sort of rushed, so I'm open to any comments on the post and if it can be improved. The blog is here: https://domsalisbury.github.io/mecfs/nice-mecfs-guideline-delay/
  9. InitialConditions

    NICE ME/CFS draft guideline - publication dates and delays 2020

    Yes, I didn't really understand Sonya's post. Maybe she sees it as a little 'campaign'. I mean they gave justification for the delay. I had a feeling it wasn't the full story, and it turns out that's partly true. I will post on this tomorrow or Friday.
  10. InitialConditions

    Guardian: Long Covid is very far from ‘all in the mind’ – but psychology can still help us treat it - by Carmine M Pariante, April 2021

    If anyone buys the print edition, please let me know if this letter appears. I have a feeling it might be online only.
  11. InitialConditions

    Guardian: Long Covid is very far from ‘all in the mind’ – but psychology can still help us treat it - by Carmine M Pariante, April 2021

    Hilarious. I've not dressed like that for years! Mind you, they've nailed that weight-of-the-world look.
  12. InitialConditions

    Guardian: Long Covid is very far from ‘all in the mind’ – but psychology can still help us treat it - by Carmine M Pariante, April 2021

    I'm pleased to say The Guardian has published my response, pretty much unedited. https://www.theguardian.com/society/2021/apr/29/long-covid-why-psychological-therapies-have-limited-benefits
  13. InitialConditions

    Sarah's adventures in blocking out light

    Because they fill the gaps between the door and the frame. I use them on my front door which is an old wooden door and ill-fitting. They're only about 5 mm thick.
  14. InitialConditions

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    I suspect this is part of a routine work-up in the long-Covid clinics. When I see these patients clasping at their chests and struggling to breathe, I imagine there is probably cardiovascular and/or respiratory damage/impairment, rather than ME-related exertional intolerance. But maybe these...
  15. InitialConditions

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    Correct. I've pointed out on Twitter other ways in which Sharpe and co have subsequently tried to recast what PACE was and who it was for:
  16. InitialConditions

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    I think it's telling that Sharpe is focusing on the evidence review in this tweet, rather than the recommendations per se. I worry that this is their way in; the basis of any challenge to the recommendations playing out right now behind closed doors.
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